| The significance of informal caregivers in information management from the perspective of heart failure patients. | |
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MedLine Citation:
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PMID: 22171581 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
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Aims and objectives. To explore patients' perspectives on the significance of informal carers in their information management. Background. Being well informed is considered a prerequisite for the ability of heart failure patients to manage their lives at home. Developing knowledge about the informal caregiver's role in patient information management is important, that is, accurate information adapted to the individual level of comprehension. Design. A qualitative approach using in-depth semi-structured interviews conducted with patients was used. Methods. Eight women and six men suffering from heart failure and with a mean age of 79·6 were interviewed. Data were collected one week after their discharge. A content analysis was performed. Results. The informal carer's role in information management from the patient's perspective represents two different phenomena. The first, information ambivalence, is related to the background of the informal carer. From what patients experienced, the process of information involvement throughout their hospital stay was affected by whether or not their informal carer had a health care background. The second phenomenon, information ambivalence, is related to the relationship between the patient and the informal carer with regard to information management at home. Conclusion. The informal carers were of great importance in the information management process because the patients relied on them so as to be able to devote their energy to managing their daily life. Relevance to clinical practice. Patients should be assessed with regard to their information management problems and to the role of their informal carers in this process. |
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Authors:
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Ragnhild Hellesø; Johannes Eines; May Solveig Fagermoen |
Publication Detail:
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Type: JOURNAL ARTICLE Date: 2011-12-16 |
Journal Detail:
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Title: Journal of clinical nursing Volume: - ISSN: 1365-2702 ISO Abbreviation: - Publication Date: 2011 Dec |
Date Detail:
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Created Date: 2011-12-16 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9207302 Medline TA: J Clin Nurs Country: - |
Other Details:
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Languages: ENG Pagination: - Citation Subset: - |
Copyright Information:
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© 2011 Blackwell Publishing Ltd. |
Affiliation:
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Authors: Ragnhild Hellesø, PhD, RN, Associate Professor, Faculty of Medicine, Institute of Health and Society, Department of Nursing Sciences, University of Oslo; Johannes Eines, RN, CCRN, Research Nurse, Department of Medicine, Division of Cardiology, Oslo University Hospital Trust; May Solveig Fagermoen, PhD, RN, Associate Professor, Faculty of Medicine, Institute of Health and Society, Department of Nursing Sciences, University of Oslo and Senior Researcher, Oslo University Hospital Trust, Research Centre, Oslo, Norway. |
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