| A qualitative analysis of best self-management practices: sickle cell disease. | |
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MedLine Citation:
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PMID: 21141291 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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BACKGROUND: Sickle cell disease (SCD) is associated with serious comorbidities resulting in a shortened lifespan, and many clients suffer from frequent pain episodes. However, others successfully manage their disease in the outpatient setting without the need for frequent health care utilization. The purpose of this project was to describe specific strategies used by adult clients with sickle cell disease to achieve optimal physical health. METHOD: A Best Self-management Practices workshop was held in conjunction with the Sickle Cell Disease Association of America meeting. A panel discussion was organized; adult clients were recruited for participation. The workshop was divided into 3 topics: complementary and alternative medicine, psychosocial issues, and work/education/training. Panel discussions were audiotaped, transcribed, and analyzed using the constant comparative method. RESULTS: Seven adult patients with sickle cell disease and 1 social worker participated. The following themes emerged: self-awareness, emotional support, career selection and success factors, nutrition, advocacy, knowledge, physical, and complementary and alternative medicine. Self-awareness was the most reported strategy with emphasis on journaling and body awareness. Emotional support included spiritual support, friends, family, professional counseling, and spiritual support. A variety of suggestions were discussed related to the other themes. All participants used many strategies daily to maintain optimal health. |
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Authors:
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Paula Tanabe; Jerlym Porter; Melissa Creary; Eric Kirkwood; Shirley Miller; Efa Ahmed-Williams; Kathryn Hassell |
Publication Detail:
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Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, P.H.S. |
Journal Detail:
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Title: Journal of the National Medical Association Volume: 102 ISSN: 0027-9684 ISO Abbreviation: J Natl Med Assoc Publication Date: 2010 Nov |
Date Detail:
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Created Date: 2010-12-10 Completed Date: 2011-01-20 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 7503090 Medline TA: J Natl Med Assoc Country: United States |
Other Details:
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Languages: eng Pagination: 1033-41 Citation Subset: IM |
Affiliation:
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Department of Emergency Medicine, Institute for Healthcare Studies, Feinberg School of Medicine, Northwestern University, Chicago, Illinois 60611, USA. ptanabe2@nmff.org |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adult Anemia, Sickle Cell / therapy* Awareness Career Choice Female Humans Male Patient Education as Topic / methods* Quality of Life Self Care / methods* Social Support |
| Grant Support | |
ID/Acronym/Agency:
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K23NR010940/NR/NINR NIH HHS; T32 HS00078/HS/AHRQ HHS |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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