| The potential of disease management for neuromuscular hereditary disorders. | |
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MedLine Citation:
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PMID: 19475807 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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Neuromuscular hereditary disorders require long-term multidisciplinary rehabilitation management. Although the need for coordinated healthcare management has long been recognized, most neuromuscular disorders are still lacking clinical guidelines about their long-term management and structured evaluation plan with associated services. One of the most prevalent adult-onset neuromuscular disorders, myotonic dystrophy type 1, generally presents several comorbidities and a variable clinical picture, making management a constant challenge. This article presents a healthcare follow-up plan and proposes a nursing case management within a disease management program as an innovative and promising approach. This disease management program and model consists of eight components including population identification processes, evidence-based practice guidelines, collaborative practice, patient self-management education, and process outcomes evaluation (Disease Management Association of America, 2004). It is believed to have the potential to significantly improve healthcare management for neuromuscular hereditary disorders and will prove useful to nurses delivering and organizing services for this population. |
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Authors:
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Maud-Christine Chouinard; Cynthia Gagnon; Luc Laberge; Carmen Tremblay; Charlotte Côté; Nadine Leclerc; Jean Mathieu |
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Publication Detail:
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Type: Journal Article; Review |
Journal Detail:
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Title: Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses Volume: 34 ISSN: 0278-4807 ISO Abbreviation: Rehabil Nurs Publication Date: 2009 May-Jun |
Date Detail:
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Created Date: 2009-05-29 Completed Date: 2009-08-05 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8104825 Medline TA: Rehabil Nurs Country: United States |
Other Details:
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Languages: eng Pagination: 118-26 Citation Subset: N |
Affiliation:
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Université du Québec a Chicoutimi, Québec, Canada. |
Export Citation:
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APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
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Canada Disease Management* Humans Models, Organizational Myotonic Dystrophy / nursing, rehabilitation* Patient Care Team / organization & administration Practice Guidelines as Topic Program Development Rehabilitation Nursing |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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