Document Detail


The patient's perspective of irritable bowel syndrome.
MedLine Citation:
PMID:  11401739     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
OBJECTIVE: The researchers wanted to understand how irritable bowel syndrome (IBS) affects patients' lives and their interactions with physicians and the health care system. STUDY DESIGN: A qualitative study was performed using focus groups of people with physician-diagnosed IBS. Immersion/crystallization was used to identify overriding themes. POPULATION: Adult volunteers with a previous physician diagnosis of IBS were included. OUTCOMES MEASURED: The outcomes were patient-reported symptoms, episode triggers, treatments, lifestyle changes, and interactions with their physicians that were related to IBS, and overriding themes identified from the focus groups. RESULTS: The subjects described IBS as a chronic episodic illness that affects their daily lives. Interaction with the medical community seldom clarified understanding of the condition or improved its management. Three overriding themes emerged from the groups: a sense of frustration, a sense of isolation, and a search for a niche in the health/sick role continuum. Frustration was evident in the perceived inability to control symptoms, prevent episodes, identify episode triggers, and obtain medical validation of the condition. The constant anticipation of the next IBS episode, the need for immediate access to toilet facilities, and the nature of the bowel symptoms often required withdrawal from social activities and resultant isolation. CONCLUSIONS: IBS is perceived as a chronic condition resulting in frustration and social isolation, and physicians are perceived to be providing inadequate medical information or support to patients with IBS.
Authors:
S Bertram; M Kurland; E Lydick; G R Locke; B P Yawn
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  The Journal of family practice     Volume:  50     ISSN:  0094-3509     ISO Abbreviation:  J Fam Pract     Publication Date:  2001 Jun 
Date Detail:
Created Date:  2001-06-12     Completed Date:  2001-07-05     Revised Date:  2007-11-15    
Medline Journal Info:
Nlm Unique ID:  7502590     Medline TA:  J Fam Pract     Country:  United States    
Other Details:
Languages:  eng     Pagination:  521-5     Citation Subset:  AIM; IM    
Affiliation:
Department of Research, Olmsted Medical Center, Rochester, MN 55904, USA.
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MeSH Terms
Descriptor/Qualifier:
Activities of Daily Living
Adaptation, Psychological*
Adolescent
Adult
Aged
Attitude to Health*
Chronic Disease
Colonic Diseases, Functional / prevention & control*,  psychology*
Communication
Cost of Illness
Female
Focus Groups
Humans
Internal-External Control
Life Style
Male
Middle Aged
Patient Education as Topic
Physician-Patient Relations*
Referral and Consultation
Self-Help Groups
Shame
Sick Role
Social Isolation

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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