Document Detail

A patient-derived perspective of health-related quality of life with peripheral arterial disease.
MedLine Citation:
PMID:  11901968     Owner:  NLM     Status:  MEDLINE    
PURPOSE: To evaluate the effects of peripheral artery disease (PAD) on health-related quality of life (HRQoL) from the patient's perspective to establish a foundation for systematic PAD-specific HRQoL assessment in this population. DESIGN: Grounded theory methodology. METHODS: Open-ended, tape-recorded interviews were conducted with 38 patients (24 men, 14 women) 44 to 83 years old (mean 65) from two US medical centers to report patient experience of PAD and its perceived effects on HRQoL. Tapes were transcribed and analyzed to identify themes and conceptual domains pertinent to the experience of PAD in this population. RESULTS: Seven major themes were identified: (a) delay in diagnosis and frustration with management of disease; (b) pain; (c) limitation in physical functioning; (d) limitation in social and role functioning; (e) compromise of self; (f) uncertainty and fear; and (g) adaptation to the effects of the disease and demonstration of resiliency. CONCLUSIONS: These findings indicate important psychosocial and emotional consequences of PAD that existing HRQoL questionnaires do not indicate. More complete data might lead to greater understanding of the effects of PAD, serving as the foundation for a more sensitive instrument to assess HRQoL as a basis for more effective interventions.
Diane Treat-Jacobson; Sheri L Halverson; Andria Ratchford; Judith G Regensteiner; Ruth Lindquist; Alan T Hirsch
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Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, P.H.S.    
Journal Detail:
Title:  Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing / Sigma Theta Tau     Volume:  34     ISSN:  1527-6546     ISO Abbreviation:  J Nurs Scholarsh     Publication Date:  2002  
Date Detail:
Created Date:  2002-03-20     Completed Date:  2002-07-08     Revised Date:  2007-11-14    
Medline Journal Info:
Nlm Unique ID:  100911591     Medline TA:  J Nurs Scholarsh     Country:  United States    
Other Details:
Languages:  eng     Pagination:  55-60     Citation Subset:  IM; N    
University of Minnesota, USA.
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MeSH Terms
Aged, 80 and over
Arterial Occlusive Diseases / physiopathology*,  psychology
Interpersonal Relations
Middle Aged
Quality of Life*
Grant Support
1-K07-HL03435-01/HL/NHLBI NIH HHS

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