Document Detail

A new reality: long-term survivorship with a malignant brain tumor.
MedLine Citation:
PMID:  23615139     Owner:  NLM     Status:  In-Data-Review    
Purpose/Objectives: To explore the survivor experience of adults who have been diagnosed three years or longer with a primary malignant brain tumor (PMBT).Research Approach: Qualitative using a biographical narrative approach.Setting: Six sites across the United States.Participants: Survivors of PMBTs (N = 35) and their family caregivers (N = 35).Methodologic Approach: Using a semistructured interview guide, survivors and caregivers were interviewed individually about their lives before and since the PMBT diagnosis. Thematic analysis was performed to identify themes.Findings: Stability in survivor lives disintegrated as a result of the changes experienced related to the tumor and its treatment. Those changes were profound and ultimately contributed to multiple losses in key areas of their lives. Over time, living with the diagnosis and its consequences required survivors and their caregivers to adapt to the new reality of their lives. Through the process of becoming a survivor, individuals were able to take back control of their lives. Adaptation required survivors to use internal and external resources as ways of coping with their new reality.Conclusions: People with PMBTs require support as they adapt to losses and changes that impact their lives. Assessment of specific changes that impact survivors' lives may be useful in guiding type of support given. Symptom management and mobilization of internal and external resources may lessen the life-changing impact.Interpretation: Nurses should capture symptom meaning during assessments and expand assessments to include social support systems. Instituting measures that facilitate survivor independence may lessen the impact of disability. The significance of symptom worsening over time requires additional research.Knowledge Translation: Restoring self-worth and taking control of their lives are critical concerns for survivors of PMBTs.
Mary Pat Lovely; Christina Stewart-Amidei; Margaretta Page; Kathleen Mogensen; Jean Arzbaecher; Kathleen Lupica; Mary Ellen Maher
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Oncology nursing forum     Volume:  40     ISSN:  1538-0688     ISO Abbreviation:  Oncol Nurs Forum     Publication Date:  2013 May 
Date Detail:
Created Date:  2013-04-25     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  7809033     Medline TA:  Oncol Nurs Forum     Country:  United States    
Other Details:
Languages:  eng     Pagination:  267-74     Citation Subset:  IM; N    
College of Nursing, University of California, San Francisco.
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