Document Detail

An exploratory study of decision making by informal caregivers of individuals with multiple sclerosis.
MedLine Citation:
PMID:  23291872     Owner:  NLM     Status:  In-Data-Review    
ABSTRACT: The types of assistance informal caregivers provide has been well documented. However, the day-to-day decisions and the resources caregivers use to make decisions have not been investigated. This study explored the decisions made by informal caregivers of multiple sclerosis care recipients and the resources they use to inform those decisions. A qualitative, exploratory-descriptive research design was used. Two separate in-depth face-to-face, audiotaped interviews were completed with each caregiver. Interviews were transcribed verbatim, and data were analyzed using thematic content analysis. Results revealed that multiple sclerosis caregivers make decisions in four topic areas: healthcare, financial, social, and family. Decisions increased in complexity and severity as the care recipient's disease progressed. Triaging acute illnesses, managing medication side effects, and end-of-life decisions were the most difficult for caregivers. Caregivers used a variety of resources to support their decision making and identified areas where resources were lacking. By more fully understanding the types of decisions informal caregivers make and the resources they use to aid these decisions, healthcare professionals can develop interventions that support these devoted individuals, increasing the quality of life for both the caregiver and the care recipient.
Mary K McCurry
Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses     Volume:  45     ISSN:  1945-2810     ISO Abbreviation:  J Neurosci Nurs     Publication Date:  2013 Feb 
Date Detail:
Created Date:  2013-01-07     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  8603596     Medline TA:  J Neurosci Nurs     Country:  United States    
Other Details:
Languages:  eng     Pagination:  52-60     Citation Subset:  IM; N    
Questions or comments about this article may be directed to Mary K. McCurry, PhD RNC ANP ACNP, at She is an assistant professor at the College of Nursing, University of Massachusetts-Dartmouth, North Dartmouth, MA.
Export Citation:
APA/MLA Format     Download EndNote     Download BibTex
MeSH Terms

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

Previous Document:  X-STOP Surgical Implant for the Treatment of Lumbar Spinal Stenosis: Clinical Practice Recommendatio...
Next Document:  "Mock herniations" to assess nurses' response times and accuracy in setting up ventriculostomies in ...