| The experience of attending a lay-led, chronic disease self-management programme from the perspective of participants with multiple sclerosis. | |
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MedLine Citation:
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PMID: 20204986 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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A lay-led, community-based intervention, the Chronic Disease Self-Management Course (CDSMC) is effective for a range of long-term health conditions (e.g. arthritis, heart disease). However, the perceived value and experience of the CDSMC for people with Multiple Sclerosis (MS) has not been examined. The present qualitative study addressed this omission. Ten participants with MS (7 female; age range 35 to 60 years; disease duration 4 to 19 years) were interviewed before attending the CDSMC and at 4-month follow-up. Data were analysed using Framework Analysis. Some participants learned new self-management techniques and reported enhanced confidence (self-efficacy), whereas other participants were already confident in their self-management ability and found the CDSMC acted as a reminder of techniques previously used. Relaxation, pacing, and goal setting were particularly valuable for managing fatigue. Goal setting helped some participants to build confidence. Participants valued meeting similar others including those with different conditions. The CDSMC was an opportunity for social comparison and inspirational role modelling. Improvements to the CDSMC were suggested, including the addition of specific MS information. Overall, the CDSMC was viewed as a valuable source of new skills and a reminder of previously learned self-management skills, particularly in the context of managing fatigue. Gender differences emerged. |
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Authors:
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J Barlow; R Edwards; A Turner |
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Publication Detail:
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Type: Journal Article |
Journal Detail:
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Title: Psychology & health Volume: 24 ISSN: 1476-8321 ISO Abbreviation: Psychol Health Publication Date: 2009 Dec |
Date Detail:
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Created Date: 2010-03-05 Completed Date: 2010-05-26 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8807983 Medline TA: Psychol Health Country: England |
Other Details:
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Languages: eng Pagination: 1167-80 Citation Subset: IM |
Affiliation:
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Coventry University, Coventry, CV1 5FB, United Kingdom. j.barlow@coventry.ac.uk |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adult Chronic Disease / therapy* Education / methods* Fatigue Female Humans Interviews as Topic Male Middle Aged Multiple Sclerosis / therapy* Peer Group* Self Care* |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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