Document Detail

The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale.
MedLine Citation:
PMID:  17126607     Owner:  NLM     Status:  MEDLINE    
Few suitable instruments exist for use with people, especially children, with both epilepsy and learning disabilities. One such measure is the Epilepsy and Learning Disabilities Quality of Life scale (ELDQOL), which has recently undergone revision following feedback from relevant users. This article reports on the final psychometric testing phase of this scale. ELDQOL consists of 70 items covering seizure severity, seizure-related injuries, antiepileptic drug side effects, behavior, mood, physical, cognitive, and social functioning, parental concern, communication, overall quality of life, and overall health. Revalidation involved a qualitative phase, to ascertain users' opinions on the wording, coverage, and layout of the questionnaire, and a quantitative phase, to examine internal consistency, test-retest reliability, and validity. There is very good evidence of the reliability and validity of the final version of ELDQOL, making it a promising instrument for assessing quality of life in children/young adults with epilepsy and learning disabilities.
Deborah Buck; Monica Smith; Richard Appleton; Gus A Baker; Ann Jacoby
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Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't     Date:  2006-11-28
Journal Detail:
Title:  Epilepsy & behavior : E&B     Volume:  10     ISSN:  1525-5069     ISO Abbreviation:  Epilepsy Behav     Publication Date:  2007 Feb 
Date Detail:
Created Date:  2007-01-29     Completed Date:  2008-08-28     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  100892858     Medline TA:  Epilepsy Behav     Country:  United States    
Other Details:
Languages:  eng     Pagination:  38-43     Citation Subset:  IM    
Institute of Society and Health, Newcastle University, Newcastle upon Tyne, UK.
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MeSH Terms
Child, Preschool
Epilepsy / psychology*
Learning Disorders / psychology*
Parent-Child Relations
Psychometrics / methods*,  standards
Quality of Life*
Reproducibility of Results
Severity of Illness Index

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