| A community outreach program for individuals with Prader-Willi syndrome. | |
| | |
MedLine Citation:
|
PMID: 2299557 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
|
Individuals with Prader-Willi Syndrome (PWS) face life with multifaceted problems that hinder adaptation to daily life. Helping this population presents a major challenge to health professionals. With few exceptions, primary providers lack support systems essential for effective management. The Iowa Child Health Specialty Clinics (CHSC) has pioneered an outreach program for affected children, their families, and primary providers. Community-based services provided by a CHSC regional nurse and PWS consultant emphasize education, communication, networking services, case review, and pragmatic approaches to care. Satisfaction with initial outreach has been high. This discussion proposes to better prepare nurses to appreciate needs of individuals with PWS and their families and to function as coordinators of services. |
| | |
Authors:
|
L R Greenswag |
Related Documents
:
|
9068767 - Evaluating models of working at the interface between mental health services and primar... 18543097 - A common factors approach to improving the mental health capacity of pediatric primary ... 17260937 - Contributions of graduate mental health workers in primary care. 19831007 - Environmental drift in health center dental practice management. 20682187 - Effectiveness of adding relapse prevention materials to telephone counseling. 6740457 - Linking treatment centers with alcoholics anonymous. |
Publication Detail:
|
Type: Journal Article |
Journal Detail:
|
Title: Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners Volume: 4 ISSN: 0891-5245 ISO Abbreviation: J Pediatr Health Care Publication Date: 1990 Jan-Feb |
Date Detail:
|
Created Date: 1990-03-13 Completed Date: 1990-03-13 Revised Date: 2004-11-17 |
Medline Journal Info:
|
Nlm Unique ID: 8709735 Medline TA: J Pediatr Health Care Country: UNITED STATES |
Other Details:
|
Languages: eng Pagination: 32-8 Citation Subset: N |
Export Citation:
|
APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
|
Adolescent Child Child, Preschool Community Health Services / organization & administration* Humans Hunger Infant Infant, Newborn Iowa Patient Care Planning Prader-Willi Syndrome / nursing, physiopathology, rehabilitation* Social Environment* Social Support* |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Previous Document: Dilemmas in assessing the health status of children with learning disabilities.
Next Document: Corneal-scleral melt in association with cataract surgery and intraocular lenses: a report of four c...