| What Information Do Cancer Genetic Counselees Prioritize? | |
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MedLine Citation:
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PMID: 21993709 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
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This study explored the informational needs of individuals attending genetic counseling for hereditary cancer, using a free-choice and a forced choice method. Prior to the consultation the informational needs of 334 counselees from Sweden and Norway were assessed by the QUOTE-gene (ca) questionnaire and by a study specific forced choice method, using Q-methodology. Questionnaire responses indicated that counselees' major concerns pertained to the need to be taken seriously, to be provided with sufficient risk estimation and medical/genetic information and to be involved in the decision making process. Furthermore, prior to counseling, counselees noted that the counselors' consideration and skillfulness were also extremely important. Analysis of the Q-sorting results revealed that counselees' needs could be assigned to one of five groups: the "need for facts; caring communication and medical information; information and support in communicating the genetic information to others; practical care and practical/medical information". Particularly noteworthy, counselees with varying backgrounds characteristics prioritized different needs. Cancer genetic counselees probably have different needs due to their medical and demographic background when attending genetic counseling. Addressing counselees' specific concerns more sufficiently and thereby increasing the overall effectiveness of the counseling session requires increased insight into individual needs, by for instance, utilizing screening methods such as QUOTE-gene (ca) prior to the counseling session. |
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Authors:
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Afsaneh Hayat Roshanai; Claudia Lampic; Charlotta Ingvoldstad; Marie Stenmark Askmalm; Chathrine Bjorvatn; Richard Rosenquist; Karin Nordin |
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Publication Detail:
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Type: JOURNAL ARTICLE Date: 2011-10-13 |
Journal Detail:
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Title: Journal of genetic counseling Volume: - ISSN: 1573-3599 ISO Abbreviation: - Publication Date: 2011 Oct |
Date Detail:
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Created Date: 2011-10-13 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9206865 Medline TA: J Genet Couns Country: - |
Other Details:
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Languages: ENG Pagination: - Citation Subset: - |
Affiliation:
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Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden, afsaneh.roshanai@pubcare.uu.se. |
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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