Document Detail

Using vignettes to explore how parents approach end-of-life decision making for terminally ill infants.
MedLine Citation:
PMID:  12226955     Owner:  NLM     Status:  MEDLINE    
With the complexity of technologies in medical centers today, family members are frequently confronted with situations that require decision making on behalf of a loved one. Some researchers have studied the needs of decision makers directly; however, the reality of asking opinions at the bedside of a dying patient makes it a difficult issue to research directly. The vignette method has been used to extrapolate data by asking study participants how they would act under certain circumstances. This vignette-based study explores potential decision-making processes collected from volunteers about how family members might make decisions for a loved one. Ninety-four students were asked to read vignettes as if they were caregivers. Students were randomly assigned to one of three clinical scenarios describing a family member at a critical decision point. The age of the family member, relationship, and medical condition were manipulated in the three otherwise identical scenarios. The results indicated that the ranked responses to the categories were different in the three age-group scenarios. In the group simulating parent decision making for the terminally ill infant, the participants reported "quality of life" and "chance of survival" most frequently as to compared to "pain/comfort" or "family relationships" for older patients. When making decisions in the infant scenario, participants were twice as likely to express religious or spiritual criteria for their decisions and half as likely to express cost concerns. Among the three scenarios, participants simulating family decisions for infants indicated that different caregiving values may apply. They were even more likely than the others to choose mechanical ventilation as an option when the prognosis is extremely poor. All family members making decisions for a loved one, regardless of age or relationship, need supportive assistance from nurses; however, pediatric nurses who develop relationships with parents of terminally ill infants especially need to understand their values in making decisions.
Marie P Kodadek; Veronica D Feeg
Related Documents :
2147955 - Depends on who you ask: what maximizes participation of families in early intervention ...
2391255 - Ethical issues in high-risk infant care.
10742315 - Symptoms associated with infant teething: a prospective study.
22822935 - "shall we blick?": novel words highlight actors' underlying intentions for 14-month-old...
6181255 - The clinical significance of a sinusoidal fetal heart rate pattern associated with alph...
3798285 - Spontaneous prolonged contractions during antenatal fetal heart rate monitoring.
Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Pediatric nursing     Volume:  28     ISSN:  0097-9805     ISO Abbreviation:  Pediatr Nurs     Publication Date:    2002 Jul-Aug
Date Detail:
Created Date:  2002-09-13     Completed Date:  2002-10-10     Revised Date:  2004-11-17    
Medline Journal Info:
Nlm Unique ID:  7505804     Medline TA:  Pediatr Nurs     Country:  United States    
Other Details:
Languages:  eng     Pagination:  333-40, 343     Citation Subset:  N    
George Mason University, Fairfax, VA, USA.
Export Citation:
APA/MLA Format     Download EndNote     Download BibTex
MeSH Terms
Decision Making*
Health Services Research
Middle Aged
Quality of Life
Terminal Care*
Terminally Ill*

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

Previous Document:  Critical care for the surgical patient.
Next Document:  Greek nurse and physician grief as a result of caring for children dying of cancer.