| Understanding information and education gaps among people with type 1 diabetes: A qualitative investigation. | |
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MedLine Citation:
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PMID: 20570079 Owner: NLM Status: In-Data-Review |
Abstract/OtherAbstract:
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OBJECTIVE: Many patients with type 1 diabetes struggle to self-manage this chronic disease, often because they have a poor knowledge and understanding of the condition. However, little attention has been paid to examining the reasons for this poor knowledge/understanding. To inform future educational interventions, we explored patients' accounts of the education and information they had received since diagnosis, and the reasons behind gaps in their diabetes knowledge. METHODS: Semi-structured interviews were conducted with 30 type 1 diabetes patients enrolled on a structured education programme in the UK. Data were analysed using an inductive, thematic approach. RESULTS: Patients' accounts illustrated a number of knowledge deficits which were influenced by various lifecourse events. Reasons for deficits included: diagnosis at a young age and assumption of decision-making responsibility by parents; lack of engagement with information when feeling well; transitions in care; inconsistency in information provision; and, lack of awareness that knowledge was poor or incomplete. CONCLUSION: Patients' knowledge deficits can arise for different reasons, at different points in the lifecourse, and may change over time. PRACTICE IMPLICATIONS: The delivery of individualised education should take account of the origins of patients' knowledge gaps and be provided on a regular and on-going basis. |
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Authors:
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David Rankin; Simon Heller; Julia Lawton |
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Publication Detail:
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Type: Journal Article Date: 2010-05-31 |
Journal Detail:
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Title: Patient education and counseling Volume: 83 ISSN: 1873-5134 ISO Abbreviation: Patient Educ Couns Publication Date: 2011 Apr |
Date Detail:
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Created Date: 2011-03-04 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8406280 Medline TA: Patient Educ Couns Country: Ireland |
Other Details:
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Languages: eng Pagination: 87-91 Citation Subset: N |
Copyright Information:
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Copyright © 2010 Elsevier Ireland Ltd. All rights reserved. |
Affiliation:
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Centre for Population Health Sciences, School of Clinical Science and Community Health, University of Edinburgh, UK. |
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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