Document Detail


Understanding the experiences of youth living with sickle cell disease: a photovoice pilot.
MedLine Citation:
PMID:  23455680     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
A Photovoice pilot was conducted with youth living with sickle cell disease (SCD), in order to further understand their lived experience and examine the acceptability, feasibility, and utility of this method in this population. SCD is an inherited genetic condition whose primary symptom is severe pain. Youth were able to reflect on their experiences with SCD using Photovoice and the adapted SHOWeD method. Parents and youth found Photovoice to be valuable for children and adolescents with SCD. Emerging themes included the impact of SCD, the importance of everyday activities and interests, and the importance of family and support.
Authors:
Jessica M Valenzuela; Lisa M Vaughn; Lori E Crosby; Heather Strong; Alexandra Kissling; Monica J Mitchell
Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural    
Journal Detail:
Title:  Family & community health     Volume:  36     ISSN:  1550-5057     ISO Abbreviation:  Fam Community Health     Publication Date:    2013 Apr-Jun
Date Detail:
Created Date:  2013-03-04     Completed Date:  2013-05-22     Revised Date:  2014-10-01    
Medline Journal Info:
Nlm Unique ID:  7809641     Medline TA:  Fam Community Health     Country:  United States    
Other Details:
Languages:  eng     Pagination:  97-108     Citation Subset:  IM    
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MeSH Terms
Descriptor/Qualifier:
Adolescent
Anemia, Sickle Cell*
Female
Healthcare Disparities*
Humans
Male
Pilot Projects
Primary Health Care
Public Health / trends*
Voice*
Grant Support
ID/Acronym/Agency:
8 UL1 TR000077-04/TR/NCATS NIH HHS; K01 MH064078/MH/NIMH NIH HHS; U54HL070871/HL/NHLBI NIH HHS; UL1 TR000077/TR/NCATS NIH HHS
Comments/Corrections

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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