Document Detail

Transmural care of terminal cancer patients: effects on the quality of life of direct caregivers.
MedLine Citation:
PMID:  9610646     Owner:  NLM     Status:  MEDLINE    
BACKGROUND: The burden of caring for terminal cancer patients has a negative effect on the informal caregivers' quality of life. OBJECTIVES: To investigate the effects of a transmural home care intervention program for terminal cancer patients on the direct caregivers' (the patient's principal informal caregiver) quality of life, compared with standard care programs. The intervention program intended to optimize the cooperation and coordination between the intramural and extramural health care organizations (transmural care). METHODS: Direct caregivers of terminal cancer patients (estimated prognosis of less than 6 months) could be included in this quasi-experimental study. The direct caregivers' quality of life was measured in a multidimensional way 1 week before (T1), 1 week after (T2), and 4 weeks after (T3) the patient's discharge from the hospital (discharge being the starting point of the intervention), then again at 3 months after the patient's death (T4). Factor analyses on the four outcome measures yielded one factor. This was considered the primary outcome measure and was named the Overall Quality of Life Index (OQOLI). RESULTS: Multiple regression analyses showed that the intervention contributed significantly positively to the direct caregivers' OQOLI at T2 (beta=.30; p < .05) and T4 (beta=.28; p < or = .05), compared with standard care. CONCLUSION: Transmural care forms a significantly positive contribution to the OQOLI of direct caregivers of terminal cancer patients 1 week after the patient's discharge from the hospital and 3 months after the patient's death. Good terminal care also appears to be important for direct caregivers as well, with respect to perceived quality of life.
F W Smeenk; L P de Witte; J C van Haastregt; R M Schipper; H P Biezemans; H F Crebolder
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Publication Detail:
Type:  Clinical Trial; Controlled Clinical Trial; Journal Article; Research Support, Non-U.S. Gov't    
Journal Detail:
Title:  Nursing research     Volume:  47     ISSN:  0029-6562     ISO Abbreviation:  Nurs Res     Publication Date:    1998 May-Jun
Date Detail:
Created Date:  1998-06-11     Completed Date:  1998-06-11     Revised Date:  2006-11-15    
Medline Journal Info:
Nlm Unique ID:  0376404     Medline TA:  Nurs Res     Country:  UNITED STATES    
Other Details:
Languages:  eng     Pagination:  129-36     Citation Subset:  AIM; IM; N    
Department of Multidisciplinary Oncology, Catharina Hospital Eindhoven, The Netherlands.
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MeSH Terms
Caregivers / psychology*
Community Health Nursing / organization & administration*
Cost of Illness
Factor Analysis, Statistical
Family / psychology*
Home Care Services / organization & administration*
Middle Aged
Neoplasms / nursing*
Program Evaluation
Quality of Life*
Regression Analysis
Terminal Care / organization & administration*

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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