| The symptom burden index: development and initial findings from use with patients with systemic sclerosis. | |
| | |
MedLine Citation:
|
PMID: 20516027 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
|
OBJECTIVE: Our study had 3 aims: (1) to evaluate the functioning of the Symptom Burden Index (SBI) in patients with systemic sclerosis (SSc); (2) to determine the amount of burden per problem experienced by patients as well as the number of patients experiencing each measured problem area, and the number of SSc problems per patient; and (3) to characterize the burden profiles of problem area-specific subgroups of patients. METHODS: We developed the SBI to determine the effect of problems in 8 major symptomatic areas of importance to patients (skin, hand mobility, calcinosis, shortness of breath, eating, bowel, sleep, and pain). RESULTS: Sixty-two patients with SSc completed questionnaires on current disease-related problems, physical functioning, and health status. On average, patients were 53.4 years old and had had SSc for 8 years. Patients were mainly women (87%), English-speaking (87%), with diffuse SSc (63%), white (69%), married (61%), and lived with 1 or more additional household members (84%). Only 26% were employed full-time. The 3 most widely reported problem areas were pain, hand, and skin, experienced by 92%, 89%, and 88%, respectively. About one-third reported experiencing 0-5 problems and one-third 7-8 problems; individual patients experienced, on average, 5.7 problems. CONCLUSION: Psychometric evaluation determined that (1) summarizing SBI problem area item sets to report burden scores per problem measured is justified; (2) the 8 proposed problem areas are independent and deserve separate evaluation; and (3) burden scores correlate as expected with the Health Assessment Questionnaire-Disability Index and the Medical Outcomes Study Short-Form 36 questionnaire. The number of problems experienced and the degree of problem-associated burden that patients with SSc bear are substantial. Use of the SBI's patient-focused measurements may aid physicians in resolving problems most directly affecting patients' quality of life. This approach to measuring symptomatic burden in patients with chronic disease could be extended to other conditions. |
| | |
Authors:
|
Michael A Kallen; Maureen D Mayes; Yana L Kriseman; Sofia B de Achaval; Vanessa L Cox; Maria E Suarez-Almazor |
Related Documents
:
|
6126077 - Cupping as a part of living finnish traditional healing. a remedy against pain. 6192317 - Preparation and presentation of patient-management problems (pmps). 7248197 - In-patient community meetings: problems and purposes. 8731267 - Histoplasmosis in the muñiz hospital of buenos aires. 21227177 - Will there be a neuroscientific theory of consciousness? 11607447 - Distortion of area and dimension under quasiconformal mappings in the plane. |
Publication Detail:
|
Type: Journal Article; Research Support, Non-U.S. Gov't Date: 2010-06-01 |
Journal Detail:
|
Title: The Journal of rheumatology Volume: 37 ISSN: 0315-162X ISO Abbreviation: J. Rheumatol. Publication Date: 2010 Aug |
Date Detail:
|
Created Date: 2010-08-02 Completed Date: 2010-11-12 Revised Date: - |
Medline Journal Info:
|
Nlm Unique ID: 7501984 Medline TA: J Rheumatol Country: Canada |
Other Details:
|
Languages: eng Pagination: 1692-8 Citation Subset: IM |
Affiliation:
|
University of Texas MD Anderson Cancer Center and The University of Texas Health Science Center, Houston, Texas 77230-1402, USA. makallen@mdanderson.org |
Export Citation:
|
APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
|
Activities of Daily Living Attitude to Health Disability Evaluation* Female Health Status* Humans Male Middle Aged Pain / complications, physiopathology Pain Measurement Psychometrics Quality of Life Questionnaires Scleroderma, Diffuse / complications*, physiopathology, psychology Scleroderma, Limited / complications*, physiopathology, psychology Self-Examination / methods Severity of Illness Index* |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Previous Document: Serum Albumin as a Marker for Disease Activity in Patients with Systemic Lupus Erythematosus.
Next Document: Renal Transplant in Wegener's Granulomatosis Compared to Microscopic Polyangiitis.