|Surviving critical illness: acute respiratory distress syndrome as experienced by patients and their caregivers.|
|PMID: 19865004 Owner: NLM Status: MEDLINE|
|OBJECTIVE: To characterize the effects of critical illness in the daily lives and functioning of acute respiratory distress syndrome survivors. Survivors of acute respiratory distress syndrome, a systemic critical illness, often report poor quality of life based on responses to standardized questionnaires. However, the experiences of acute respiratory distress syndrome survivors have not been reported.
DESIGN: We conducted semistructured interviews with 23 acute respiratory distress syndrome survivors and 24 caregivers 3 to 9 mos after intensive care unit admission, stopping enrollment after thematic saturation was reached. Transcripts were analyzed, using Colaizzi's qualitative methodology, to identify significant ways in which survivors' critical illness experience impacted their lives.
SETTING: Medical and surgical intensive care units of an academic medical center and a community hospital.
PATIENTS: We recruited consecutively 31 acute respiratory distress syndrome survivors and their informal caregivers. Eight patients died before completing interviews.
MEASUREMENTS AND MAIN RESULTS: Participants related five key elements of experience as survivors of acute respiratory distress syndrome: 1) pervasive memories of critical care; 2) day-to-day impact of new disability; 3) critical illness defining the sense of self; 4) relationship strain and change; and 5) ability to cope with disability. Survivors described remarkable disability that persisted for months. Caregivers' interviews revealed substantial strain from caregiving responsibilities as well as frequent symptom minimization by patients.
CONCLUSIONS: The diverse and unique experiences of acute respiratory distress syndrome survivors reflect the global impact of severe critical illness. We have identified symptom domains important to acute respiratory distress syndrome patients who are not well represented in existing health outcomes measures. These insights may aid the development of targeted interventions to enhance recovery and return of function after acute respiratory distress syndrome.
|Christopher E Cox; Sharron L Docherty; Debra H Brandon; Christie Whaley; Deborah K Attix; Alison S Clay; Daniel V Dore; Catherine L Hough; Douglas B White; James A Tulsky|
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|Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't|
|Title: Critical care medicine Volume: 37 ISSN: 1530-0293 ISO Abbreviation: Crit. Care Med. Publication Date: 2009 Oct|
|Created Date: 2009-10-29 Completed Date: 2009-11-16 Revised Date: 2012-11-16|
Medline Journal Info:
|Nlm Unique ID: 0355501 Medline TA: Crit Care Med Country: United States|
|Languages: eng Pagination: 2702-8 Citation Subset: AIM; IM|
|Duke University, Durham, NC, USA. firstname.lastname@example.org|
|APA/MLA Format Download EndNote Download BibTex|
Activities of Daily Living
Caregivers / psychology*
Cost of Illness
Critical Care / psychology*
Outcome Assessment (Health Care)
Patient Care Team
Quality of Life / psychology*
Respiratory Distress Syndrome, Adult / psychology*
Stress Disorders, Post-Traumatic / diagnosis, psychology
Survivors / psychology*
|K23 HL074294/HL/NHLBI NIH HHS; K23 HL081048/HL/NHLBI NIH HHS; K23 HL081048/HL/NHLBI NIH HHS; K23 HL081048-01/HL/NHLBI NIH HHS; K23 HL081048-02/HL/NHLBI NIH HHS; K23 HL081048-03/HL/NHLBI NIH HHS; K23 HL081048-04/HL/NHLBI NIH HHS; KL2 RR024130/RR/NCRR NIH HHS|
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