Document Detail


Social participation of relatives post-stroke: the role of rehabilitation and related ethical issues.
MedLine Citation:
PMID:  20950140     Owner:  NLM     Status:  In-Data-Review    
Abstract/OtherAbstract:
Purpose. (1) Describe the challenges facing relatives of persons with stroke in accomplishing their daily activities and social roles (participation). (2) Reflect on the role of rehabilitation for relatives and ethical issues that may emerge following the adoption of a family-centred approach. Method. Review of the scientific literature in Medline (1996 to July 2009), Embase (1996 to July 2009) databases using keywords: stroke AND participation AND family OR spouse OR caregivers AND ethics AND burden. Selection criteria were as follows: study must examine the participation of relatives post-stroke (or equivalent concept such as burden), rehabilitation interventions for relatives post-stroke or ethical issues related to being a relative of a person with stroke. Articles not written in English or French were excluded. Results. The sample comprised 17 scientific articles. According to five studies, social participation of relatives is characterised by increased responsibilities and a reduction in interpersonal relationships and leisure. In rehabilitation, there is no consensus regarding what should be done for relatives; guidelines exist but are not applied in practice. Little has been formally reported regarding ethical issues likely to emerge for relatives. Conclusions. The main impact of stroke is on social roles of relatives such as responsibilities, interpersonal relationships and leisure. The role of rehabilitation and related ethical issues needs further examination.
Authors:
Caroline Pellerin; Annie Rochette; Eric Racine
Publication Detail:
Type:  Journal Article     Date:  2010-10-15
Journal Detail:
Title:  Disability and rehabilitation     Volume:  33     ISSN:  1464-5165     ISO Abbreviation:  Disabil Rehabil     Publication Date:  2011  
Date Detail:
Created Date:  2011-05-25     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  9207179     Medline TA:  Disabil Rehabil     Country:  England    
Other Details:
Languages:  eng     Pagination:  1055-64     Citation Subset:  IM    
Affiliation:
Occupational Therapy Program, School of Rehabilitation, Université de Montréal, Montreal, Canada and Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal.
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