| Screening infants for neuroblastoma: the parents' perspective. | |
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MedLine Citation:
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PMID: 7947017 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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Health visitors collected urine samples from 6-month-old infants in a feasibility study of infant screening for neuroblastoma. As part of the project's evaluation, a study was conducted of the parents' views and experiences of screening. Parents of the most recently screened infants were contacted: 85 (68% of those contacted) were interviewed. Despite intermittent media coverage and written and verbal information being available, parents' overall knowledge of neuroblastoma screening was poor. Thirteen percent reported that they did not know the purpose of the test. Approximately one-third of parents reported initial anxiety about the test. Where samples were repeated because of unsatisfactory results, this percentage increased to 41% for a first-repeat sample. Parents were willing to make considerable effort to provide samples for screening but worried unnecessarily because the information they were given was either inadequate or in an inappropriate format (ie, verbal instead of written). |
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Authors:
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S Bell; L Parker; M Cole; A W Craft |
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Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't |
Journal Detail:
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Title: Pediatric hematology and oncology Volume: 11 ISSN: 0888-0018 ISO Abbreviation: Pediatr Hematol Oncol Publication Date: 1994 Jul-Aug |
Date Detail:
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Created Date: 1994-12-08 Completed Date: 1994-12-08 Revised Date: 2006-11-15 |
Medline Journal Info:
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Nlm Unique ID: 8700164 Medline TA: Pediatr Hematol Oncol Country: ENGLAND |
Other Details:
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Languages: eng Pagination: 433-7 Citation Subset: IM |
Affiliation:
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Department of Child Health, University of Newcastle upon Tyne, Medical School, United Kingdom. |
Export Citation:
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APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
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Humans Infant Mass Screening* / psychology Neuroblastoma / prevention & control* Parents |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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