| Recruitment and attrition in twin register studies of childhood behavior: the example of the Australian Twin ADHD Project. | |
| | |
MedLine Citation:
|
PMID: 12537853 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
|
There are a growing number of large-scale initiatives for twin registers of children. The Australian Twin ADHD Project (ATAP) is used to illustrate two key limitations which may arise with such studies, namely (1) the importance of including or possibly excluding families in which one or both twins have significant developmental disability, and (2) the selective failure to recruit and/or the selective attrition of families in which parents and children share behavioral difficulties. Initially ATAP excluded 1 in 6 of families whose twins were enrolled in the volunteer-based Australian Twin Registry (ATR), and as more children with significant problems were identified, these families were sequentially excluded. With longitudinal data over ten years, two points about retention were identified: the difficulty of retaining the twins in late adolescence, and the loss of the families whose twins had more ADHD symptoms. We discuss strategies for limiting the loss of families and for ensuring comparability of data across registers with similar interests but different methods of recruitment and exclusion. |
| | |
Authors:
|
David A Hay; Michael McStephen; Florence Levy; Jillian Pearsall-Jones |
Related Documents
:
|
3571733 - Hyperactive children and peer interaction: knowledge and performance of social skills. 4028613 - Attention deficit disorder children with or without hyperactivity. which behaviors are ... 21660813 - Sexual offending in adolescence: a comparison of sibling offenders and nonsibling offen... |
Publication Detail:
|
Type: Journal Article; Research Support, Non-U.S. Gov't; Review |
Journal Detail:
|
Title: Twin research : the official journal of the International Society for Twin Studies Volume: 5 ISSN: 1369-0523 ISO Abbreviation: Twin Res Publication Date: 2002 Oct |
Date Detail:
|
Created Date: 2003-03-04 Completed Date: 2003-03-14 Revised Date: 2007-11-15 |
Medline Journal Info:
|
Nlm Unique ID: 9815819 Medline TA: Twin Res Country: Australia |
Other Details:
|
Languages: eng Pagination: 324-8 Citation Subset: IM |
Affiliation:
|
School of Psychology, Curtin University, Perth, WA, Australia. d.hay@curtain.edu.au |
Export Citation:
|
APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
|
Adolescent Adolescent Behavior / psychology Attention Deficit Disorder with Hyperactivity / genetics*, psychology Australia Blood Group Antigens / genetics Child Child Behavior Child, Preschool Data Collection / methods Disabled Children / psychology Diseases in Twins / genetics* Female Humans Longitudinal Studies Molecular Biology Patient Dropouts / psychology, statistics & numerical data* Patient Selection* Placentation Polymorphism, Genetic / genetics Pregnancy Questionnaires Registries / statistics & numerical data* Twin Studies as Topic / methods*, statistics & numerical data* |
| Chemical | |
Reg. No./Substance:
|
0/Blood Group Antigens |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Previous Document: Population based ascertainment of twins and their siblings, born in Western Australia 1980 to 1992, ...
Next Document: The Australian Twin Registry.