Document Detail

Recruitment and attrition in twin register studies of childhood behavior: the example of the Australian Twin ADHD Project.
MedLine Citation:
PMID:  12537853     Owner:  NLM     Status:  MEDLINE    
There are a growing number of large-scale initiatives for twin registers of children. The Australian Twin ADHD Project (ATAP) is used to illustrate two key limitations which may arise with such studies, namely (1) the importance of including or possibly excluding families in which one or both twins have significant developmental disability, and (2) the selective failure to recruit and/or the selective attrition of families in which parents and children share behavioral difficulties. Initially ATAP excluded 1 in 6 of families whose twins were enrolled in the volunteer-based Australian Twin Registry (ATR), and as more children with significant problems were identified, these families were sequentially excluded. With longitudinal data over ten years, two points about retention were identified: the difficulty of retaining the twins in late adolescence, and the loss of the families whose twins had more ADHD symptoms. We discuss strategies for limiting the loss of families and for ensuring comparability of data across registers with similar interests but different methods of recruitment and exclusion.
David A Hay; Michael McStephen; Florence Levy; Jillian Pearsall-Jones
Related Documents :
10570693 - Diagnosis of attention-deficit/hyperactivity disorder in the office.
10197403 - Comparing the strengths and difficulties questionnaire and the child behavior checklist...
11068893 - Child-reported depression and anxiety in preadolescence: ii. preschool predictors.
Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't; Review    
Journal Detail:
Title:  Twin research : the official journal of the International Society for Twin Studies     Volume:  5     ISSN:  1369-0523     ISO Abbreviation:  Twin Res     Publication Date:  2002 Oct 
Date Detail:
Created Date:  2003-03-04     Completed Date:  2003-03-14     Revised Date:  2007-11-15    
Medline Journal Info:
Nlm Unique ID:  9815819     Medline TA:  Twin Res     Country:  Australia    
Other Details:
Languages:  eng     Pagination:  324-8     Citation Subset:  IM    
School of Psychology, Curtin University, Perth, WA, Australia.
Export Citation:
APA/MLA Format     Download EndNote     Download BibTex
MeSH Terms
Adolescent Behavior / psychology
Attention Deficit Disorder with Hyperactivity / genetics*,  psychology
Blood Group Antigens / genetics
Child Behavior
Child, Preschool
Data Collection / methods
Disabled Children / psychology
Diseases in Twins / genetics*
Longitudinal Studies
Molecular Biology
Patient Dropouts / psychology,  statistics & numerical data*
Patient Selection*
Polymorphism, Genetic / genetics
Registries / statistics & numerical data*
Twin Studies as Topic / methods*,  statistics & numerical data*
Reg. No./Substance:
0/Blood Group Antigens

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

Previous Document:  Population based ascertainment of twins and their siblings, born in Western Australia 1980 to 1992, ...
Next Document:  The Australian Twin Registry.