Document Detail

Ready or not: planning for health declines in couples with advanced multiple sclerosis.
MedLine Citation:
PMID:  23291870     Owner:  NLM     Status:  MEDLINE    
This study explored how couples living with advanced multiple sclerosis approach planning for health changes together. A qualitative descriptive approach was used, with multiple in-depth interviews. Ten couples were interviewed, consisting of 10 participants with advanced multiple sclerosis and their 10 respective spouses. Interviews were transcribed verbatim and analyzed for themes related to dyad decision making. Particular focus was paid to how or if couples planned for worsening health, including advance care planning. Characteristics of couples who had made plans for worsening health included a desire to make decisions ahead of time, work in a healthcare field, and a life-threatening health event for the care-giving partner. Characteristics of couples who had not discussed plans for worsening health included diminished quality of communication between partners and hoping for a cure. Findings suggest that providers may need to assess quality of communication between partners, because strained communication may negatively affect the process of informed healthcare decision making.
Hannah Chen; Barbara Habermann
Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural    
Journal Detail:
Title:  The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses     Volume:  45     ISSN:  1945-2810     ISO Abbreviation:  J Neurosci Nurs     Publication Date:  2013 Feb 
Date Detail:
Created Date:  2013-01-07     Completed Date:  2013-06-13     Revised Date:  2014-02-04    
Medline Journal Info:
Nlm Unique ID:  8603596     Medline TA:  J Neurosci Nurs     Country:  United States    
Other Details:
Languages:  eng     Pagination:  38-43     Citation Subset:  IM; N    
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MeSH Terms
Caregivers / psychology*
Decision Making
Interpersonal Relations*
Interviews as Topic
Life Change Events
Living Wills / psychology
Middle Aged
Multiple Sclerosis / nursing*,  psychology*
Quality of Life
Specialties, Nursing / methods*
Grant Support

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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