Document Detail


Quality control of birth defect registry data: a case study.
MedLine Citation:
PMID:  8434104     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
The California Birth Defects Monitoring Program maintains a population-based registry of children born with congenital malformations. Trained data collectors routinely visit hospitals and genetics centers to identify cases and abstract information. These data are provided to the public health, medical, and lay communities and are used for conducting prevalence and case-control studies. A stratified sample of each data collector's work for one data year was reevaluated to assess the quality of case ascertainment and record abstraction. The sample included data from 109 facilities (37 percent) and 729 abstracts (5 percent). There are three steps in data collection: case-finding, the process of identifying potential cases; culling, the process of reviewing the charts of potential cases to determine which are reportable; and abstracting, the process of recording information from the charts of reportable cases. The probability that a potential case is missed during casefinding is 7 percent for small facilities, 4 percent for medium facilities, and 1 percent for large facilities. The probability that a reportable case is mistakenly classified as not reportable during culling is 3 percent for small and medium facilities and 1 percent for large facilities. The probabilities of incorrectly abstracting selected diagnoses and demographic items are slightly higher (8 percent for small and medium facilities and 6 percent for large facilities) because these are more complex processes than are casefinding and culling. Finally, the overall probability of missing a case from the registry is 3 percent. Therefore, these data indicate that the information collected by this registry are both reliable and complete.
Authors:
J Schulman; J A Hahn
Related Documents :
23669724 - Clear cell adenocarcinoma of the uterine cervix: a case report and review of the litera...
18784244 - Distinctive epidemiologic and clinical features of common krait (bungarus caeruleus) bi...
8046264 - Mass survey of leprosy in lalitpur district, nepal.
11874214 - Hepatotoxicity associated with the new antidepressants.
8220524 - Strategies for the certification of the eradication of wild poliovirus transmission in ...
1949974 - Leukemia in bipolar mood disorder: is lithium contraindicated?
Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Public health reports (Washington, D.C. : 1974)     Volume:  108     ISSN:  0033-3549     ISO Abbreviation:  Public Health Rep     Publication Date:    1993 Jan-Feb
Date Detail:
Created Date:  1993-03-16     Completed Date:  1993-03-16     Revised Date:  2009-11-18    
Medline Journal Info:
Nlm Unique ID:  9716844     Medline TA:  Public Health Rep     Country:  UNITED STATES    
Other Details:
Languages:  eng     Pagination:  91-8     Citation Subset:  AIM; IM    
Affiliation:
Battelle Memorial Institute, Arlington, VA 22201.
Export Citation:
APA/MLA Format     Download EndNote     Download BibTex
MeSH Terms
Descriptor/Qualifier:
California / epidemiology
Congenital Abnormalities / epidemiology*
Humans
Infant, Newborn
Probability
Quality Control
Registries / standards*
Comments/Corrections

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


Previous Document:  Attendance patterns of older adults in a health promotion program.
Next Document:  Heterosexual and mother-to-child transmission of AIDS in the hemophilia community.