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A Qualitative Study of Psychosocial Factors Affecting Expecting Mothers Who Choose to Continue a Cleft Lip and/or Palate Pregnancy to Term.
MedLine Citation:
PMID:  23407332     Owner:  NLM     Status:  In-Data-Review    
Abstract/OtherAbstract:
BACKGROUND: : Prenatal detection of cleft lip and/or palate (CL/P) leads to high rates of induced termination of pregnancy. There has been little research in Taiwan done on the psychosocial factors affecting those who decide to continue their CL/P pregnancy.
PURPOSE: : This study identified the principal psychosocial factors that affect expecting mothers who chose to continue their CL/P pregnancy to term.
METHODS: : Purposive sampling recruited expecting mothers with CL/P-diagnosed fetuses. Recruiting took place between May 2000 and March 2002 at a tertiary referral hospital in Taipei, Taiwan. Those who had decided to continue their pregnancy to term were asked to participate. Researchers obtained oral informed consent to be interviewed during the week following CL/P diagnosis. Interviews for each participant were completed within a 2-week period. All information was given to the interviewees in written and verbal forms before providing their written informed consent to participate.
RESULTS: : The five major themes central to participant experiences included (1) loss of self-value as a mother, (2) blaming the mother, (3) indecision about whether to continue the pregnancy, (4) anxiety triggered by insufficient information, and (5) burden of care and concerns about potential disadvantaged status.
CONCLUSIONS: : Significant psychological distress was identified among participants following their fetus' CL/P diagnosis. It was encouraging to learn that all participants told researchers in postpartum interviews that they did not regret the decision to take their child to term.
Authors:
Yueh-Tzu Hsieh; Yu-Mei Yu Chao; Judith Shu-Chu Shiao
Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  The journal of nursing research : JNR     Volume:  21     ISSN:  1948-965X     ISO Abbreviation:  J Nurs Res     Publication Date:  2013 Mar 
Date Detail:
Created Date:  2013-02-14     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  101128757     Medline TA:  J Nurs Res     Country:  China (Republic : 1949- )    
Other Details:
Languages:  eng     Pagination:  1-9     Citation Subset:  IM; N    
Affiliation:
1MS, RN, Instructor, Department of Nursing, Chang Hwa University of Medical Technology 2PhD, RN, Chair Professor, School of Nursing, Central Taiwan University of Science and Technology 3PhD, RN, Associate Professor, Department of Nursing, College of Medicine, National Taiwan University and National Taiwan University Hospital.
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