| Preferences for hereditary breast and ovarian cancer information among Mexican, Cuban and Puerto Rican women at risk. | |
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MedLine Citation:
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PMID: 20150724 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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BACKGROUND: Little is known about the preferences of at-risk Hispanic women to gain information on hereditary breast and ovarian cancer (HBOC). AIMS: This study sought to qualitatively explore preferences for HBOC information among at-risk Mexican, Puerto Rican and Cuban women and to pilot a mock brochure aimed at Hispanic women. METHODS: Hispanic women aged 18-65 years with a personal or family history of breast or ovarian cancer participated in a semistructured interview. Data were analyzed using a combination of open-coding and content analysis. RESULTS: Fifty-three women participated in the study. For the majority of content areas, there were no major differences between the subethnicities. All women reported discussing cancer with a doctor after a family member had been diagnosed and discussing cancer within their families; however, the content of the discussion varied. Cuban and Puerto Rican women reported using the Internet routinely for health care information while Mexican women said they did not have access to computers and did not use them. All women liked the content and photos in the brochure but Mexican women thought the reading level was too high. Preferences for the spokesperson focused on the need for Spanish-speaking health care providers. CONCLUSIONS: While the data show some similarities, such as patterns of cancer discussion and appreciation of the mock brochure, there were differences between the groups on information preferences. In designing HBOC education information for Hispanic audiences, it is important to consider varied channels for dissemination and preferences for specific types of information across subethnicities. |
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Authors:
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Gwendolyn P Quinn; Jessica McIntyre; Susan T Vadaparampil |
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Publication Detail:
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Type: Journal Article; Research Support, N.I.H., Extramural Date: 2010-02-12 |
Journal Detail:
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Title: Public health genomics Volume: 14 ISSN: 1662-8063 ISO Abbreviation: Public Health Genomics Publication Date: 2011 |
Date Detail:
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Created Date: 2011-07-07 Completed Date: 2011-10-27 Revised Date: 2012-05-16 |
Medline Journal Info:
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Nlm Unique ID: 101474167 Medline TA: Public Health Genomics Country: Switzerland |
Other Details:
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Languages: eng Pagination: 248-58 Citation Subset: IM |
Copyright Information:
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Copyright © 2010 S. Karger AG, Basel. |
Affiliation:
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Department of Oncologic Sciences, University of South Florida College of Medicine, Tampa, FL, USA. |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adult Aged Breast Neoplasms / genetics, psychology* Cuba / ethnology Female Hispanic Americans* Humans Mexico / ethnology Middle Aged Ovarian Neoplasms / genetics, psychology* Patient Education as Topic* Puerto Rico / ethnology |
| Grant Support | |
ID/Acronym/Agency:
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1 R03 HG003887/HG/NHGRI NIH HHS; R03 HG003887/HG/NHGRI NIH HHS; R03 HG003887-01/HG/NHGRI NIH HHS |
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