| Postnatal support for mothers of children with Down syndrome. | |
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MedLine Citation:
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PMID: 15882082 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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Delivering and receiving a postnatal diagnosis of Down syndrome is not an easy experience for most physicians or parents. In this study, 467 mothers of children with Down syndrome in Spain completed a survey about the postnatal support services they received immediately following the diagnosis of their child. Mothers reported feeling anxious, frightened, guilty, angry, and, in rare cases, suicidal. According to most mothers, physicians did not give adequate amounts of information about Down syndrome and rarely did they give enough printed materials or make referrals to parent support groups. Little seems to have changed since 1972. Mothers provided recommendations on how the Spanish medical system could be improved, with implications for other countries including the United States. |
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Authors:
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Brian Skotko; Ricardo Canal Bedia |
Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't |
Journal Detail:
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Title: Mental retardation Volume: 43 ISSN: 0047-6765 ISO Abbreviation: Ment Retard Publication Date: 2005 Jun |
Date Detail:
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Created Date: 2005-05-10 Completed Date: 2005-08-04 Revised Date: 2006-11-15 |
Medline Journal Info:
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Nlm Unique ID: 18640670R Medline TA: Ment Retard Country: United States |
Other Details:
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Languages: eng Pagination: 196-212 Citation Subset: IM |
Affiliation:
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Harvard Medical School, 12 Greenway Ct., Suite 5, Brookline, MA 02446, USA. Brian_Skotko@student.hms.harvard.edu |
Export Citation:
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APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
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Adolescent Adult Child Child, Preschool Cross-Sectional Studies Down Syndrome* / diagnosis Female Humans Male Mothers / psychology* Postpartum Period / psychology* Social Support* |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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