| Population based ascertainment of twins and their siblings, born in Western Australia 1980 to 1992, through the construction and validation of a maternally linked database of siblings. | |
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MedLine Citation:
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PMID: 12537852 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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This paper describes the creation of a unique maternal identifier for use in the investigation of perinatal, postneonatal and child outcomes in relation to maternal characteristics. All Midwives' records of Western Australian (WA) births were routinely linked to registrations of births and deaths for infants born from 1980 to 1992 inclusive, then linked to WA hospital discharge data and to registries of birth defects and cerebral palsy to create a longitudinal health record for each infant. However, since each birth to a woman was recorded as a separate event, there was no way to identify siblings. Probabilistic record linkage, based on information about the mother, was used for this task. Logical inconsistencies within the data were used to test the validity of the linkages between birth records attributed to each mother. Information about the mother from other epidemiological studies and data abstracted from hospital case notes was also used to validate sibships. Linkage of the records of 310,255 births in WA during that period resulted in the formation of 181,133 sibships of one or more children. Pooling the results of all of the validation methods gave an error of 0.9%. Linkage identified 3678 sibships containing multiple births, and 305 sets of maternal twins. Ascertainment of twins and their siblings for an ongoing twin register, the WA Twin Child Health (WATCH) study, was a natural consequence of this process. |
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Authors:
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Maxine L Croft; Anne W Read; Nicholas de Klerk; Janice Hansen; Jennifer J Kurinczuk |
Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't; Validation Studies |
Journal Detail:
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Title: Twin research : the official journal of the International Society for Twin Studies Volume: 5 ISSN: 1369-0523 ISO Abbreviation: Twin Res Publication Date: 2002 Oct |
Date Detail:
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Created Date: 2003-03-04 Completed Date: 2003-03-14 Revised Date: 2007-11-15 |
Medline Journal Info:
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Nlm Unique ID: 9815819 Medline TA: Twin Res Country: Australia |
Other Details:
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Languages: eng Pagination: 317-23 Citation Subset: IM |
Affiliation:
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Department of Public Health, The University of Western Australia, Nedlands, Australia. maxine@ichr.uwa.edu.au |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Bias (Epidemiology) Birth Certificates* Cerebral Palsy / epidemiology Congenital Abnormalities / epidemiology Databases, Factual* Death Certificates* Female Humans Infant, Newborn Longitudinal Studies Medical Record Linkage / methods*, standards Medical Records Systems, Computerized Meta-Analysis as Topic Nurse Midwives Patient Discharge / statistics & numerical data Population Surveillance / methods* Pregnancy / statistics & numerical data* Registries* Siblings* Twins / statistics & numerical data* Western Australia / epidemiology |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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