Document Detail

Placement, relocation and end of life issues in aging adults with and without Down's syndrome: a retrospective study.
MedLine Citation:
PMID:  20576062     Owner:  NLM     Status:  MEDLINE    
BACKGROUND: Aging adults with Down's syndrome (DS) experience more relocations and other life events than adults with intellectual disabilities aged 50 and older without DS. Age-related functional decline and the higher incidence of dementia were implicated as the contributing factors that led to relocation and nursing home placement. METHOD: A retrospective study of adults with intellectual disabilities who were born prior to the year 1946 was conducted to analyse the number of relocations experienced over a 5- and 10-year period. The cohort consisted of 140 individuals (61 with DS between ages 50-71 years, and 79 without DS between ages 57-89 years) who had been referred to a diagnostic and research clinic. RESULTS: Analyses revealed the number of relocations over a 5- and 10-year period were significantly greater in the DS group. Placement in a nursing home for end of life care was significantly higher in the DS group whereas the majority (90%) in the non-DS group remained in a group home setting. Mortality was significantly earlier in the DS group with the mean age at death to be 61.4 years compared with 73.2 years in the non-DS group. CONCLUSIONS: The present results suggest that aging adults with DS encounter more relocations, and are more likely to have their final placement for end of life care in a nursing home. In contrast, the adults without DS were subjected to less relocation and remained in the same group home setting.
P Patti; K Amble; M Flory
Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Journal of intellectual disability research : JIDR     Volume:  54     ISSN:  1365-2788     ISO Abbreviation:  J Intellect Disabil Res     Publication Date:  2010 Jun 
Date Detail:
Created Date:  2010-06-25     Completed Date:  2010-10-29     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  9206090     Medline TA:  J Intellect Disabil Res     Country:  England    
Other Details:
Languages:  eng     Pagination:  538-46     Citation Subset:  IM    
George Jervis Clinic, NYS Institute for Basic Research in Developmental Disabilities, Staten Island, New York 10314, USA.
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MeSH Terms
Advance Directives / legislation & jurisprudence*
Aged, 80 and over
Cohort Studies
Down Syndrome / epidemiology*,  mortality,  psychology*
Group Homes / statistics & numerical data
Homes for the Aged / statistics & numerical data
Life Change Events
Mental Retardation / epidemiology*,  mortality,  psychology*
Middle Aged
Nursing Homes / statistics & numerical data
Residential Mobility / statistics & numerical data*
Retrospective Studies
Survival Analysis
Terminal Care / statistics & numerical data
United States

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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