Document Detail


Pilot intervention outcomes of an educational program for biospecimen research participation.
MedLine Citation:
PMID:  23150142     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
Biospecimen banking programs are critically dependent on participation of diverse population members. The purpose of this study was to test a pilot intervention to enhance recruitment to a biospecimen bank among racially diverse community members. A mixed methods, community-based participatory research (CBPR) orientation was used to develop and pilot an intervention to educate and recruit participants to a biospecimen bank. Pre- and post-assessments of knowledge about research, perceived costs and benefits of participation (expected utility), and emotional states associated with research participation (affective associations) as well as post-intervention participation in biobanking were examined to determine intervention effectiveness. The pilot intervention educated 148 community members; 107 (73 %) donated blood and 77 (52 %) completed a 36-page lifestyle questionnaire. Thirty-two percent of participants were African American and 11 % were Native American. Participating in the educational program significantly reduced negative affect associated with research involving collection of genetic material or completion of a survey. Improved knowledge and understanding of biobanking and research through a CBPR approach are likely to increase participation rates in biobanking for diverse community members. Accurate information and improved knowledge can reduce individual anxiety and concerns that serve as barriers to research participation.
Authors:
Marc T Kiviniemi; Frances G Saad-Harfouche; Gregory L Ciupak; Warren Davis; Kirsten Moysich; Nikia Clark Hargrave; Christine B Ambrosone; Charles Walker; Deborah O Erwin
Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural    
Journal Detail:
Title:  Journal of cancer education : the official journal of the American Association for Cancer Education     Volume:  28     ISSN:  1543-0154     ISO Abbreviation:  J Cancer Educ     Publication Date:  2013 Mar 
Date Detail:
Created Date:  2013-03-27     Completed Date:  2013-09-12     Revised Date:  2014-03-07    
Medline Journal Info:
Nlm Unique ID:  8610343     Medline TA:  J Cancer Educ     Country:  England    
Other Details:
Languages:  eng     Pagination:  52-9     Citation Subset:  IM    
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MeSH Terms
Descriptor/Qualifier:
Adolescent
Adult
Aged
Biological Specimen Banks / standards*
Biomedical Research / education*
Community-Based Participatory Research*
Consumer Participation*
Female
Health Education*
Health Knowledge, Attitudes, Practice
Humans
Intervention Studies
Male
Middle Aged
Neoplasms / prevention & control*
Pilot Projects
Program Evaluation
Young Adult
Grant Support
ID/Acronym/Agency:
K07 CA106225/CA/NCI NIH HHS; K07CA106225/CA/NCI NIH HHS; P30CA016056-27/CA/NCI NIH HHS; R03 CA139946/CA/NCI NIH HHS; R03CA139946/CA/NCI NIH HHS; U54 CA153598/CA/NCI NIH HHS
Comments/Corrections

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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