Document Detail


Personal financial effects of multiple myeloma and its treatment.
MedLine Citation:
PMID:  23047800     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
BACKGROUND: Improvements in some treatment programs for multiple myeloma (MM) are increasing survival. As patients live longer with MM as a chronic disease, the personal financial effects of MM treatment become a serious concern.
OBJECTIVE: The objective of this study was to identify the personal financial effects of MM and its treatment in 5 areas: employment, disability, health/medical and life insurance, retirement, and out-of-pocket expenses.
METHODS: We mailed a questionnaire about financial issues to 1015 patients who had received intensive treatment for MM at the study site. Data analysis included descriptive statistics and comparisons using independent t tests.
RESULTS: Our sample (n = 762; mean age, 61 [SD, 9.26] years) experienced issues with employment (66% employed at diagnosis and treatment; 33% employed at questionnaire time), disability (35% applied), health/medical and life insurance (29% lost coverage and 8% changed coverage), retirement (13% retired during treatment), and out-of-pocket expenses (36% of income in first treatment year and 28% of income during most recent 12 months).
CONCLUSIONS: Issues of employment, disability, health insurance, retirement, and out-of-pocket costs for treatment are major challenges for patients.
IMPLICATIONS FOR PRACTICE: In the midst of assessing physical needs during clinical trials for chemotherapy and stem cell transplants, healthcare providers must keep sight of patients' personal financial needs so that we can intervene promptly with referrals to social work, rehabilitation therapy, and other healthcare professions to help patients decrease the personal financial effects of MM and its treatment.
Authors:
Julia A Goodwin; Elizabeth Ann Coleman; Ellen Sullivan; Robin Easley; Paula K McNatt; Nupur Chowdhury; Carol Beth Stewart
Publication Detail:
Type:  Comparative Study; Journal Article; Research Support, N.I.H., Extramural    
Journal Detail:
Title:  Cancer nursing     Volume:  36     ISSN:  1538-9804     ISO Abbreviation:  Cancer Nurs     Publication Date:    2013 Jul-Aug
Date Detail:
Created Date:  2013-06-18     Completed Date:  2014-05-06     Revised Date:  2014-07-01    
Medline Journal Info:
Nlm Unique ID:  7805358     Medline TA:  Cancer Nurs     Country:  United States    
Other Details:
Languages:  eng     Pagination:  301-8     Citation Subset:  IM; N    
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MeSH Terms
Descriptor/Qualifier:
Adult
Aged
Cost of Illness*
Cross-Sectional Studies
Disability Evaluation
Employment / economics
Female
Financing, Personal / economics*
Humans
Income
Insurance Coverage / economics*
Male
Middle Aged
Multiple Myeloma / diagnosis,  economics*,  therapy*
Needs Assessment
Questionnaires
Retirement / economics
Socioeconomic Factors
United States
Grant Support
ID/Acronym/Agency:
P20 NR009006/NR/NINR NIH HHS; P20 NR009006/NR/NINR NIH HHS
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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