Document Detail


Perceptions of Family Members of Children with Cleft Lip and Palate in Hyderabad, India and its Rural Outskirts Regarding Craniofacial Anomalies.
MedLine Citation:
PMID:  22519557     Owner:  NLM     Status:  Publisher    
Abstract/OtherAbstract:
Abstract Objective: This study aimed to understand cultural perspectives on cleft anomalies in the community residing in Hyderabad, India and its rural outskirts. Design: An ethnography was conducted using a twenty-one item interview guide approved by the director of The GSR Institute of Craniofacial Surgery (GSR). Settings: Interviews were conducted at GSR, a specialty surgical center located in Hyderabad, India. Patients and Participants: All patients presented to GSR with either cleft lip, cleft palate, or cleft lip and palate at the time of this study were included. Results: Of the twenty-three (23) families interviewed, twelve (12) mothers believed the cleft was caused by an eclipse, while two (2) believed the scientific explanation their physician offered. Fourteen (14) families were offered no explanation for the cleft lip and/or palate at the time of their first physician visit. Admittedly, no families practiced non-western methods for treatment of the cleft. One (1) family identified beliefs held in the community that their child with a cleft lip was bad luck. Conclusions: A commonly held belief in this community in India is that cleft lip, cleft palate or cleft lip and palate are caused by an eclipse. There appears to be insufficient education on cleft impairments for families by physicians. Data generated from studies similar to this can be used to design educational protocols that address this gap in community understanding of orofacial clefting. Key Words: Cleft, Culture, Beliefs, Hyderabad.
Authors:
Aparajit Naram; Sumeet N Makhijani; Depack Naram; Srinivas Gosla Reddy; Rajgopal Reddy; Janice Lalikos; Jerome D Chao
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Publication Detail:
Type:  JOURNAL ARTICLE     Date:  2012-4-22
Journal Detail:
Title:  The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association     Volume:  -     ISSN:  1545-1569     ISO Abbreviation:  -     Publication Date:  2012 Apr 
Date Detail:
Created Date:  2012-4-23     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  9102566     Medline TA:  Cleft Palate Craniofac J     Country:  -    
Other Details:
Languages:  ENG     Pagination:  -     Citation Subset:  -    
Affiliation:
a Umass Medical School.
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