Document Detail

Patient-reported outcomes (PROs): putting the patient perspective in patient-centered outcomes research.
MedLine Citation:
PMID:  23774513     Owner:  NLM     Status:  MEDLINE    
Patient-centered outcomes research (PCOR) aims to improve care quality and patient outcomes by providing information that patients, clinicians, and family members need regarding treatment alternatives, and emphasizing patient input to inform the research process. PCOR capitalizes on available data sources and generates new evidence to provide timely and relevant information and can be conducted using prospective data collection, disease registries, electronic medical records, aggregated results from prior research, and administrative claims. Given PCOR's emphasis on the patient perspective, methods to incorporate patient-reported outcomes (PROs) are critical. PROs are defined by the US Food and Drug Administration as "Any report coming directly from patients… about a health condition and its treatment." However, PROs have not routinely been collected in a way that facilitates their use in PCOR. Electronic medical records, disease registries, and administrative data have only rarely collected, or been linked to, PROs. Recent technological developments facilitate the electronic collection of PROs and linkage of PRO data, offering new opportunities for putting the patient perspective in PCOR. This paper describes the importance of and methods for using PROs for PCOR. We (1) define PROs; (2) identify how PROs can be used in PCOR and the critical role of electronic data methods for facilitating the use of PRO data in PCOR; (3) outline the challenges and key unanswered questions that need to be addressed for the routine use of PROs in PCOR; and (4) discuss policy and research interventions to accelerate the integration of PROs with clinical data.
Claire F Snyder; Roxanne E Jensen; Jodi B Segal; Albert W Wu
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Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't    
Journal Detail:
Title:  Medical care     Volume:  51     ISSN:  1537-1948     ISO Abbreviation:  Med Care     Publication Date:  2013 Aug 
Date Detail:
Created Date:  2013-06-24     Completed Date:  2013-09-13     Revised Date:  2014-08-04    
Medline Journal Info:
Nlm Unique ID:  0230027     Medline TA:  Med Care     Country:  United States    
Other Details:
Languages:  eng     Pagination:  S73-9     Citation Subset:  IM    
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MeSH Terms
Comparative Effectiveness Research / organization & administration*
Data Collection
Electronic Health Records
Health Services Research / organization & administration*
Outcome Assessment (Health Care) / methods*
Patient Satisfaction*
Patient-Centered Care / organization & administration*
Grant Support
P30 CA006973/CA/NCI NIH HHS; P30 CA051008/CA/NCI NIH HHS; P30CA006973/CA/NCI NIH HHS; P30CA051008/CA/NCI NIH HHS

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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