Document Detail

Patient knowledge of their disease: a French multicenter study in ankylosing spondylitis.
MedLine Citation:
PMID:  15589438     Owner:  NLM     Status:  MEDLINE    
OBJECTIVES: To assess knowledge of ankylosing spondylitis (AS) by patients and to identify factors associated with knowledge. METHODS: Ninety patients receiving follow-up in France for AS completed a disease knowledge auto-questionnaire yielding a correct answer score [CAS] and a correct item score [CIS]. Correlations between these scores and other factors were examined. RESULTS: Mean CAS was 16.4/25 (SD = 4.8) and mean CIS 7.3 +/- 3.1/14. Female gender, higher educational level, having read about AS, being aware of AS support groups, and having received longer tertiary-care hospital management were associated with better knowledge. In the multivariate analysis, only three factors were independently associated with the level of knowledge in this population: "reading about AS", "level of general education", and "awareness of an AS support group". CONCLUSION: Knowledge of AS by French patients was lower than previously reported in a British population. Although education should be offered to all AS patients, the need may be greater in those with limited formal schooling. Booklets on the disease and contact with patient groups seem to be useful tools for improving knowledge of the disease.
Pascal Claudepierre; René-Marc Flipo; Jean Sibilia; Jean-Marie Berthelot; Philippe Goupille; Sébastien Cortinovis; Patrick Cunin; Xavier Chevalier; Daniel Wendling
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Publication Detail:
Type:  Journal Article; Multicenter Study    
Journal Detail:
Title:  Joint, bone, spine : revue du rhumatisme     Volume:  71     ISSN:  1297-319X     ISO Abbreviation:  Joint Bone Spine     Publication Date:  2004 Nov 
Date Detail:
Created Date:  2004-12-13     Completed Date:  2005-03-04     Revised Date:  2007-11-15    
Medline Journal Info:
Nlm Unique ID:  100938016     Medline TA:  Joint Bone Spine     Country:  France    
Other Details:
Languages:  eng     Pagination:  550-6     Citation Subset:  IM    
Department of Rheumatology, Hôpital Henri Mondor, AP-HP, Créteil, France.
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MeSH Terms
Educational Status
Middle Aged
Patient Education as Topic*
Spondylitis, Ankylosing / psychology*

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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