Document Detail

Parental role in the Intensive Care Unit for children affected by Werdnig Hoffmann disease.
MedLine Citation:
PMID:  20440234     Owner:  NLM     Status:  MEDLINE    
AIM: The aim of this study was to determine the role of parents after extubation of their children affected by Spinal Muscular Atrophy Type 1 (SMA1) in the Pediatric Intensive Care Unit. Currently, children affected by SMA1 are often treated with non-invasive mechanical ventilation and mechanical support of cough. During the first two or three years of life they frequently present severe respiratory failure requiring intubation. Extubation may be at severe risk of failure even because of inadequate care. METHODS: Parents of SMA1 children were offered an early education on the most critical aspects and a training in non-invasive respiratory support after diagnosis. They were asked and allowed to stay as longer as possible with their child after extubation. Quality and quantity of care given by parents during the first 24 hours after extubation were recorded. RESULTS: All parents participated to the success of the weaning procedure: they gave continuous care and all children could be extubated. CONCLUSION: The presence of parents after extubation of SMA1 patients is important for the success of the procedure; otherwise, the presence of a skilled nurse is needed, with a nurse-patient ratio of 1:1.
G Ottonello; C Mastella; A Franceschi; E Lampugnani; A Moscatelli; F Punch; M Tumolo; A Penzo; M Gamba; D Bosticco; P Tuo; L Nahum
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Minerva pediatrica     Volume:  62     ISSN:  0026-4946     ISO Abbreviation:  Minerva Pediatr.     Publication Date:  2010 Apr 
Date Detail:
Created Date:  2010-05-04     Completed Date:  2010-09-16     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  0400740     Medline TA:  Minerva Pediatr     Country:  Italy    
Other Details:
Languages:  eng     Pagination:  147-51     Citation Subset:  IM    
Unit of Anesthesiology and Resuscitation, G. Gaslini Hospital, Genoa, Italy.
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MeSH Terms
Intensive Care Units
Spinal Muscular Atrophies of Childhood / therapy*
Ventilator Weaning*

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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