| Palliative care for patients with dementia: a national survey. | |
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MedLine Citation:
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PMID: 21054292 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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OBJECTIVES: To determine the extent to which hospice and nonhospice palliative care (PC) programs provide services to patients with dementia and to describe barriers and facilitators to providing nonhospice PC. DESIGN: Telephone and Web-based surveys. SETTING: U.S. hospice and PC programs from the National Hospice and Palliative Care Organization's program list. PARTICIPANTS: Executive directors of 240 hospice programs, 173 programs providing hospice and nonhospice PC, and 13 programs providing nonhospice PC. MEASUREMENTS: A telephone survey of hospice and PC providers followed by an online survey of programs providing nonhospice PC. RESULTS: Ninety-four percent of hospices and 72% of PC programs had served at least one patient with a primary diagnosis of dementia within the past year. Based on 80 responses to the online survey, the most highly rated barriers to providing PC were lack of awareness of PC by families and referring providers, need for respite services, and reimbursement policies. Highly rated needs were family information, assistance with caregiver burden, and behavioral symptoms. Strategies critical for success were an interdisciplinary team, collaboration with community organizations, and alternatives to aggressive end-of-life care. CONCLUSION: Almost all hospices and a majority of nonhospice PC programs serve patients with dementia. Education and policy efforts should focus on education for families and providers, support for caregivers, and reforming reimbursement structures to provide coverage for interdisciplinary PC earlier in the disease, when patients have high needs but are not hospice eligible. |
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Authors:
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Alexia M Torke; Laura R Holtz; Siu Hui; Peter Castelluccio; Stephen Connor; Matthew A Eaton; Greg A Sachs |
Publication Detail:
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Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't |
Journal Detail:
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Title: Journal of the American Geriatrics Society Volume: 58 ISSN: 1532-5415 ISO Abbreviation: J Am Geriatr Soc Publication Date: 2010 Nov |
Date Detail:
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Created Date: 2010-11-08 Completed Date: 2010-12-02 Revised Date: 2011-09-26 |
Medline Journal Info:
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Nlm Unique ID: 7503062 Medline TA: J Am Geriatr Soc Country: United States |
Other Details:
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Languages: eng Pagination: 2114-21 Citation Subset: IM |
Copyright Information:
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© 2010, Copyright the Authors. Journal compilation © 2010, The American Geriatrics Society. |
Affiliation:
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Indiana University Center for Aging Research, Indianapolis, Indiana, USA. atorke@iupui.edu |
Export Citation:
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APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
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Aged Data Collection Dementia / therapy* Health Services Accessibility Hospice Care* Humans Palliative Care* United States |
| Grant Support | |
ID/Acronym/Agency:
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K23 AG031323-03/AG/NIA NIH HHS; K23AG031323/AG/NIA NIH HHS |
| Comments/Corrections | |
Comment In:
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Evid Based Nurs. 2011 Apr;14(2):40-1
[PMID:
21421969
]
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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