Document Detail

Nurse recognition of early deviation in development in home videos of infants with Rett disorder.
MedLine Citation:
PMID:  14641806     Owner:  NLM     Status:  MEDLINE    
BACKGROUND: In the genetic Rett disorder (RD), infants make some progress then suffer a dramatic developmental regression, usually before 2 years of age. Home videos, taken before the problems are recognized, offer an objective source for detecting early signs. METHODS: Thirty-six health visitors and midwives were invited to view brief examples from home videos of a cohort of 14 infants with RD and 11 control infants with normal development in the first year of life, and to indicate, by pressing a button, points in the recordings which aroused their suspicion of developmental deviation. They were then invited to comment on their selection. The participants were blind as to whether any individual example showed an infant with normal development or one with some form of developmental disturbance. RESULTS: From the first month of life and throughout the first year, infants with RD received more button presses than controls (46%, 361 out of 778 viewings) in comparison with the control group (12%, 67 of 558). The consistent nature of the health professionals' comments made possible their categorization under four headings: appearance, posture, movement and contact. In the first month of life, the hand postures of infants with RD received particular comment from midwives (23 out of 37 comments overall on posture). CONCLUSIONS: The present study strongly suggests the presence of early signs of developmental deviation in infants with RD, although, in most cases, formal developmental screening procedures have failed to detect these before the ages of 12 or 18 months.
B Burford; A M Kerr; H A Macleod
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Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't    
Journal Detail:
Title:  Journal of intellectual disability research : JIDR     Volume:  47     ISSN:  0964-2633     ISO Abbreviation:  J Intellect Disabil Res     Publication Date:  2003 Nov 
Date Detail:
Created Date:  2003-12-03     Completed Date:  2004-04-06     Revised Date:  2006-11-15    
Medline Journal Info:
Nlm Unique ID:  9206090     Medline TA:  J Intellect Disabil Res     Country:  England    
Other Details:
Languages:  eng     Pagination:  588-96     Citation Subset:  IM    
Department of Educational Studies, University of Edinburgh, Edinburgh, UK.
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MeSH Terms
Cohort Studies
Community Health Nursing*
Diagnosis, Differential
Infant, Newborn
Nursing Assessment
Nursing Diagnosis*
Rett Syndrome / diagnosis,  nursing*
Video Recording

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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