| No one listens to me, nobody believes me: self management and the experience of living with encephalitis. | |
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MedLine Citation:
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PMID: 20488605 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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Over the past twenty years, there has been considerable interest in individuals' experience of chronic illness. In addition to the more established concerns of medical sociology, recent policy reflects an interest in how individuals manage their condition. Using material from qualitative interviews with 23 individuals carried out in the United Kingdom, this paper examines a person's experience following encephalitis, as a way of exploring the potential value of current policy initiatives associated with self-management. Our findings suggest that individuals' illness experiences become embedded in conditional acceptance derived from and sustained through their social relationships. This raises a fundamental policy tension: is the purpose of current self-management strategies to help individuals cope better with illness or with the context in which their illness experience is realised? We conclude that policy needs to question how it 'imagines' long-standing conditions, without recourse to generalised notions of coping and adjustment. This, in turn, means adapting a less instrumental and more contextualised approach to self-management. |
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Authors:
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Karl Atkin; Sally Stapley; Ava Easton |
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Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't Date: 2010-05-18 |
Journal Detail:
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Title: Social science & medicine (1982) Volume: 71 ISSN: 1873-5347 ISO Abbreviation: Soc Sci Med Publication Date: 2010 Jul |
Date Detail:
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Created Date: 2010-06-14 Completed Date: 2010-07-27 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8303205 Medline TA: Soc Sci Med Country: England |
Other Details:
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Languages: eng Pagination: 386-93 Citation Subset: IM |
Copyright Information:
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Copyright 2010 Elsevier Ltd. All rights reserved. |
Affiliation:
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Department of Health Sciences, Alcuin College, University of York, Seebohm Rowntree Building, York YO10 5DD, United Kingdom. ka512@york.ac.uk |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adaptation, Psychological Adult Aged Chronic Disease Cost of Illness Diagnostic Errors Encephalitis / diagnosis, psychology*, therapy Female Humans Interpersonal Relations Interviews as Topic Male Middle Aged Patient Satisfaction / statistics & numerical data* Physician-Patient Relations Qualitative Research Self Care* Social Perception* |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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