| 'No one agrees except for those of us who have it': endometriosis patients as an epistemological community. | |
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MedLine Citation:
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PMID: 18092978 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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This paper contributes to the literature on patients' claims-making work by analysing the epistemological strategies and standards used by members of an endometriosis patient community. It draws upon focus group research with members of a support group for endometriosis sufferers, and an open-ended survey of an e-mail list for women with the disease. Lynn Hankinson Nelson's (1993) concept of epistemological community is used to examine standards and practices for developing and evaluating knowledge used by women with endometriosis. Particular attention is paid to the use and centrality of the notion of experience within this community. |
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Authors:
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Emma Whelan |
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Publication Detail:
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Type: Journal Article |
Journal Detail:
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Title: Sociology of health & illness Volume: 29 ISSN: 0141-9889 ISO Abbreviation: Sociol Health Illn Publication Date: 2007 Nov |
Date Detail:
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Created Date: 2007-12-20 Completed Date: 2008-03-05 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8205036 Medline TA: Sociol Health Illn Country: England |
Other Details:
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Languages: eng Pagination: 957-82 Citation Subset: IM |
Affiliation:
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Sociology and Social Anthropology, Dalhousie University, Halifax, Nova Scotia, Canada. emma.whelan@dal.ca |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Body Image Consumer Health Information / methods* Endometriosis / psychology* Female Health Knowledge, Attitudes, Practice Humans Knowledge* Patient Participation / psychology* Physician-Patient Relations Self-Help Groups* Sociology, Medical |
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