| Narrating disability, narrating religious practice: reconciliation and fragile X syndrome. | |
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MedLine Citation:
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PMID: 20597744 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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This article examines the place of religion in the narratives of mothers of children with fragile X syndrome. In semistructured interviews, a majority of women combined narratives of religious practice with illness narratives, interpreting their children's disabilities within a religious framework. Informed by Arthur Frank's (1995) concept of "wounded storytellers," the authors articulate a reconciliation narrative that mothers commonly used to describe their transition from viewing disability as a burden or challenge to seeing it as a blessing, or as a part of God's purpose or plan for their lives. The authors discuss the significance of narrative for better understanding religious perspectives on disability and conclude with the implications of these findings for practitioners and future research. |
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Authors:
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Marsha Michie; Debra Skinner |
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Publication Detail:
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Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't |
Journal Detail:
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Title: Intellectual and developmental disabilities Volume: 48 ISSN: 1934-9491 ISO Abbreviation: Intellect Dev Disabil Publication Date: 2010 Apr |
Date Detail:
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Created Date: 2010-07-05 Completed Date: 2010-08-04 Revised Date: 2011-09-26 |
Medline Journal Info:
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Nlm Unique ID: 101299965 Medline TA: Intellect Dev Disabil Country: United States |
Other Details:
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Languages: eng Pagination: 99-111 Citation Subset: IM |
Affiliation:
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Center for Genomics and Society, University of North Carolina-Chapel Hill, 27599-7240, USA. michie@unc.edu |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adaptation, Psychological* Adult Anxiety / diagnosis, psychology Caregivers / psychology* Child Child Rearing Child, Preschool Cost of Illness* Depression / diagnosis, psychology Disabled Children / psychology* Female Fragile X Syndrome / genetics, psychology* Heterozygote Detection Humans Infant Interview, Psychological Male Middle Aged Mothers / psychology* Narration* Religion and Psychology* Social Support Young Adult |
| Grant Support | |
ID/Acronym/Agency:
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5P50HG004488/HG/NHGRI NIH HHS; P30 HD003110-36S1/HD/NICHD NIH HHS; P30 HD003110-S1/HD/NICHD NIH HHS; P50 HG004488-01/HG/NHGRI NIH HHS |
| Comments/Corrections | |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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