| Living with Crouzon syndrome: how do young adults with Crouzon syndrome handle their life situation? | |
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MedLine Citation:
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PMID: 20659180 Owner: NLM Status: In-Process |
Abstract/OtherAbstract:
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BACKGROUND: Recent research has been focused on those attributes that appear to buffer a person against the stresses and strains of living with a visible difference. AIM: To provide some insight on how young adults with Crouzon syndrome handle their life. DESIGN: Telephone interviews were carried out with eight Crouzon syndrome individuals (six males, two females, mean age 25.4 years) and data were analysed according to the qualitative method of grounded theory. RESULTS: The informants' main concern was to make the best of their situation, showing that even in adverse conditions, as in Crouzon syndrome, several individuals do find ways to live with their difference and to succeed in various aspects of life, using strategies they construct. Such strategies, as identified from the present investigation, were labelled: committed to an engaging activity, avoiding exposed situations, actively launching oneself, struggling with normalizing facial appearance, and lowering the expectations of finding a love partner. CONCLUSIONS: The adaptation of successful coping strategies seemed to be crucial in the quest of attainment of higher self-esteem. The more the participants in the study used the coping strategies they had developed over time, the better they handled their life situation, which led to enhanced well-being. |
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Authors:
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Dimitrios Stavropoulos; Ulrika Hallberg; Bengt Mohlin; Catharina Hagberg |
Publication Detail:
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Type: Journal Article |
Journal Detail:
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Title: International journal of paediatric dentistry / the British Paedodontic Society [and] the International Association of Dentistry for Children Volume: 21 ISSN: 1365-263X ISO Abbreviation: Int J Paediatr Dent Publication Date: 2011 Jan |
Date Detail:
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Created Date: 2010-12-07 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9107511 Medline TA: Int J Paediatr Dent Country: England |
Other Details:
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Languages: eng Pagination: 35-42 Citation Subset: D |
Copyright Information:
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© 2010 The Authors. International Journal of Paediatric Dentistry © 2010 BSPD, IAPD and Blackwell Publishing Ltd. |
Affiliation:
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Department of Orthodontics, Institute of Odontology, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden. dimitrios.stavropoulos@odontologi.gu.se |
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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