| Living With Half a Heart-Experiences of Young Adults With Single Ventricle Physiology: A Qualitative Study. | |
| | |
MedLine Citation:
|
PMID: 22635059 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
|
BACKGROUND AND RESEARCH OBJECTIVE:: Approximately 3% of children with congenital heart disease born in Denmark have single ventricle physiology (SVP). In previous decades, these children did not survive into adulthood. However, because of new surgical techniques and improved medical care, they now have a 90% survival rate. Several studies have described the somatic status of SVP patients using clinical parameters; however, only a few studies have researched the life perspectives and coping skills in this patient group. The aim of this study was to investigate how young adults with an SVP diagnosis are coping with adulthood and the emotional experiences of daily life. SUBJECTS AND METHODS:: Semistructured, qualitative interviews were held with 11 SVP respondents, selected by physical and psychological parameters identified in an earlier quantitative study. Data from the interviews were analyzed by a research group using a phenomenological methodology. RESULTS AND CONCLUSIONS:: The goal for SVP patients is to gain control over their disease to live normal lives. Patients require special support from their core network to overcome physical and psychological challenges. Respondents underscored the need for friends and resource persons outside the family to help lift them out of their role as disabled cardiac patients and provide them with "normal" life experiences. |
| | |
Authors:
|
Dorthe Overgaard; Catriona King; Rie F Christensen; Anne-Marie Schrader; Lis Adamsen |
Related Documents
:
|
22331399 - Financial responsibility of hospitalized patients who left against medical advice: medi... 22590619 - Citizen participation in patient prioritization policy decisions: an empirical and expe... 19559299 - Rituximab therapy for severe refractory chronic henoch-schönlein purpura. 22277629 - Pursuit of sexual function post-radical prostatectomy. 22591189 - Clinical and temporal patterns of severe pneumonia causing critical illness during hajj. 2690289 - Risk of infectious complications in patients taking glucocorticosteroids. 16792799 - Gastrointestinal failure in intensive care: a retrospective clinical study in three dif... 10572489 - Hospital acquired pneumonia in the medical intensive care unit--a prospective study. 22419509 - A multicenter prospective observational study of the conformity of temozolomide prescri... |
Publication Detail:
|
Type: JOURNAL ARTICLE Date: 2012-5-24 |
Journal Detail:
|
Title: The Journal of cardiovascular nursing Volume: - ISSN: 1550-5049 ISO Abbreviation: - Publication Date: 2012 May |
Date Detail:
|
Created Date: 2012-5-28 Completed Date: - Revised Date: - |
Medline Journal Info:
|
Nlm Unique ID: 8703516 Medline TA: J Cardiovasc Nurs Country: - |
Other Details:
|
Languages: ENG Pagination: - Citation Subset: - |
Affiliation:
|
Dorthe Overgaard, PhD, RN Researcher, The Heart Centre, Copenhagen University Hospital, Rigshospitalet, and University Hospitals Centre for Nursing and Care Research (UCSF), Rigshospitalet, Copenhagen, Denmark. Catriona King, RN Nurse at the Grown-up CHD, The Heart Centre, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. Rie F. Christensen, MSc Research Assistant, The Heart Centre, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. Anne-Marie Schrader, MPH, RN Lecturer, University College, Metropol, Copenhagen, Denmark. Lis Adamsen, PhD, RN Professor, Institute of Public Health, Copenhagen University, and University Hospitals Centre for Nursing and Care Research (UCSF), Rigshospitalet, Copenhagen, Denmark. |
Export Citation:
|
APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
|
|
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Previous Document: Management of Hyponatremia in Heart Failure: Role of Tolvaptan.
Next Document: Early Cognitive Behavioral Therapy for Depression After Cardiac Surgery.