Document Detail

Issues of consent and feedback in a genetic epidemiological study of women with breast cancer.
MedLine Citation:
PMID:  12672889     Owner:  NLM     Status:  MEDLINE    
Women (N=21) who had had breast cancer and had been enrolled in a large genetic breast cancer epidemiological study were interviewed about their experience of participation in the study, their attitudes to the confidentiality of data, and the feedback of personal and general research results. Collection of family history information seemed more salient in indicating the genetic nature of the study than the enrolment information sheet. There were no concerns about confidentiality. While participants would have welcomed general feedback about the results of the study and were critical that this had not been provided, the feedback of personal information proved complicated and, sometimes, difficult. It is suggested that individual feedback of genetic test information in epidemiological studies should be undertaken only when there are specific reasons.
M P M Richards; M Ponder; P Pharoah; S Everest; J Mackay
Related Documents :
10794579 - The evaluation of common breast problems.
20605339 - Standardized method for quantification of developing lymphedema in patients treated for...
12704719 - Influence of some anthropometric parameters on the risk of development of distal compli...
16868059 - Effect of raloxifene on bone mineral density in premenopausal women at increased risk o...
20733129 - Expanding the criteria for brca mutation testing in breast cancer survivors.
17054549 - Urban-rural differences in the management of screen-detected invasive breast cancer and...
11729859 - The association between telomerase activity and hormone receptor status and p53 express...
7576999 - The potential roles of nm23 in cancer metastasis and cellular differentiation.
21897549 - Fine needle aspiration cytology of a case of micropapillary variant of urothelial carci...
Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Journal of medical ethics     Volume:  29     ISSN:  0306-6800     ISO Abbreviation:  J Med Ethics     Publication Date:  2003 Apr 
Date Detail:
Created Date:  2003-04-03     Completed Date:  2003-06-06     Revised Date:  2009-11-19    
Medline Journal Info:
Nlm Unique ID:  7513619     Medline TA:  J Med Ethics     Country:  England    
Other Details:
Languages:  eng     Pagination:  93-6     Citation Subset:  E; IM    
Centre for Family Research, University of Cambridge, Cambridge, UK.
Export Citation:
APA/MLA Format     Download EndNote     Download BibTex
MeSH Terms
Breast Neoplasms / genetics*,  psychology
Feedback, Psychological / ethics*
Genetic Counseling / ethics
Genetic Testing / ethics
Informed Consent / ethics*
Interview, Psychological
Middle Aged
Mutation / genetics
Ovarian Neoplasms / genetics
Patient Satisfaction

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

Previous Document:  Is there an ethical difference between preimplantation genetic diagnosis and abortion?
Next Document:  Differences in medical students' attitudes to academic misconduct and reported behaviour across the ...