Document Detail

Intractable epilepsy: A survey of patients and caregivers.
MedLine Citation:
PMID:  16675306     Owner:  NLM     Status:  MEDLINE    
The social and health consequences associated with epilepsy are often magnified among patients with refractory epilepsy. Despite recent advances in the treatment of seizure disorders, many people with epilepsy continue to suffer from uncontrolled seizures and adverse side effects from medical therapy. This survey is the first to focus solely on the experiences, attitudes, and quality of life of a refractory epilepsy population, both those with the condition and their caregivers. To participate in this survey, respondents had to currently be experiencing seizures or troubling treatment side effects and had to have tried at least two different epilepsy medications. These survey data represent three groups of participants (n = 903): those with epilepsy who self-reported on their condition (Group 1, n = 503), the caregivers of those with refractory epilepsy (Group 2, n = 200), and those with epilepsy who had their condition reported on by a caregiver (Group 3, n = 200). This survey revealed that the negative consequences associated with epilepsy tend to be greater among those experiencing treatment side effects and a greater number of seizures. Physicians must take into account medication side effects and quality-of-life issues when treating patients with epilepsy.
James W Wheless
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Publication Detail:
Type:  Journal Article     Date:  2006-05-03
Journal Detail:
Title:  Epilepsy & behavior : E&B     Volume:  8     ISSN:  1525-5050     ISO Abbreviation:  Epilepsy Behav     Publication Date:  2006 Jun 
Date Detail:
Created Date:  2006-05-22     Completed Date:  2006-07-13     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  100892858     Medline TA:  Epilepsy Behav     Country:  United States    
Other Details:
Languages:  eng     Pagination:  756-64     Citation Subset:  IM    
Le Bonheur Comprehensive Epilepsy Program, University of Tennessee Health Science Center, Memphis, TN 38105, USA.
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MeSH Terms
Anticonvulsants / adverse effects*
Caregivers / psychology*
Data Collection
Epilepsy / drug therapy,  psychology*
Middle Aged
Quality of Life*
Seizures / psychology*
Reg. No./Substance:

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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