Document Detail

Improving the quality of surveillance data on congenital heart defects in the metropolitan Atlanta congenital defects program.
MedLine Citation:
PMID:  17990334     Owner:  NLM     Status:  MEDLINE    
BACKGROUND: One of the challenges in epidemiologic studies of congenital heart defects (CHDs) has been the lack of a current, standard nomenclature and classification system. Recently such a standard nomenclature became available from the Society of Thoracic Surgeons (STS) Congenital Heart Surgery Database. This study reports the classification of cases of CHDs in a birth defects surveillance database using modified STS nomenclature. METHODS: Records of infants and fetuses in the Metropolitan Atlanta Congenital Defects Program delivered during 1968-2003 with CHD diagnoses were reviewed by a team of pediatric cardiologists. The cases were assigned one or more STS codes and subsequently grouped into successively broader levels of aggregation. Aggregation was based on presumed morphogenetically similar developmental mechanisms. RESULTS: There were 12,639 cases reviewed, of which 89% had a single, primary STS code. Structural CHDs were found in 7,749 infants, while 4,890 were considered to have structurally normal hearts. Application of clinical CHD nomenclature improved the clinical accuracy of surveillance data by eliminating normal physiologic variants and obligatory shunt lesions. Classification also aggregated specific CHDs into groups appropriate for research and surveillance. CONCLUSIONS: Application of a current, standard CHD nomenclature and classification system to cases in a birth defects surveillance database improves the specificity of cardiac diagnoses and allows for the development of a flexible case aggregation system for monitoring of CHD prevalence.
Tiffany Riehle-Colarusso; Matthew J Strickland; Mark D Reller; William T Mahle; Lorenzo D Botto; Csaba Siffel; Mike Atkinson; Adolfo Correa
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Publication Detail:
Type:  Journal Article; Multicenter Study    
Journal Detail:
Title:  Birth defects research. Part A, Clinical and molecular teratology     Volume:  79     ISSN:  1542-0752     ISO Abbreviation:  Birth Defects Res. Part A Clin. Mol. Teratol.     Publication Date:  2007 Nov 
Date Detail:
Created Date:  2007-11-13     Completed Date:  2008-01-29     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  101155107     Medline TA:  Birth Defects Res A Clin Mol Teratol     Country:  United States    
Other Details:
Languages:  eng     Pagination:  743-53     Citation Subset:  IM    
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.
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MeSH Terms
Centers for Disease Control and Prevention (U.S.)
Child, Preschool
Data Collection / methods
Databases, Factual
Georgia / epidemiology
Heart Defects, Congenital / classification*,  diagnosis*,  prevention & control
Infant, Newborn
Medical Records
Population Surveillance
Terminology as Topic*
United States

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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