Document Detail

Implementation and first results of a German chronic kidney disease registry.
MedLine Citation:
PMID:  23211342     Owner:  NLM     Status:  MEDLINE    
Advanced chronic kidney disease (CKD) is gaining increasing medical and economical importance, but little information exists about treatment variation and the impact of routine clinical treatments on survival, quality of life, and cost. We demonstrate the first results of a national electronic registry of nephrology clinic data that will serve as a resource for the prospective observation of CKD patients in Germany. A large network of German nephrologist practices is currently joining the project. Routinely obtained clinical data for non-dialysis dependent CKD patients are documented in health records electronically, and elements from these data are extracted using QuaNT (Qualitätssicherung Nephrologie und Transplantation) to create a centralized database. Here, we report cross-sectional data from 59 participating nephrology clinics and 6,187 patients with CKD Stage 3 - 5 in 2011. Mean age ± standard deviation (SD) was 72 ± 12 years. The distribution of CKD 3, 4, and 5 (non-dialysis) was 60%, 33%, and 8%, respectively. The major renal diseases were hypertension/vascular nephropathy (47%) and diabetic nephropathy (26%). Reninangiotensin-system inhibitor prescription was 78%. Vitamin D prescription was 50%, phosphate binders 6%, iron (oral or i.v.) 19%, and erythropoietin-stimulating agents 14%. This electronic registry follows clinical nephrology care and outcomes for CKD patients in Germany, and increased participation is anticipated. As a component of the initiative, variation in patient care will be studied to identify best treatment practices in analyses integrated into the international CKD Outcomes and Practice Patterns Study (CKDopps).
Werner Kleophas; Brian Bieber; Bruce M Robinson; Johannes Duttlinger; Danilo Fliser; Gerhard Lonnemann; L Christian Rump; Ronald L Pisoni; Friedrich K Port; Helmut Reichel;
Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't    
Journal Detail:
Title:  Clinical nephrology     Volume:  79     ISSN:  0301-0430     ISO Abbreviation:  Clin. Nephrol.     Publication Date:  2013 Mar 
Date Detail:
Created Date:  2013-02-26     Completed Date:  2013-06-18     Revised Date:  2013-06-20    
Medline Journal Info:
Nlm Unique ID:  0364441     Medline TA:  Clin Nephrol     Country:  Germany    
Other Details:
Languages:  eng     Pagination:  184-91     Citation Subset:  IM    
Gemeinschaftspraxis Karlstraße, Düsseldorf, Germany.
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MeSH Terms
Cross-Sectional Studies
Electronic Health Records
Germany / epidemiology
Middle Aged
Potassium / blood
Renal Insufficiency, Chronic / epidemiology*
Reg. No./Substance:
Erratum In:
Clin Nephrol. 2013 May;79(5):420

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