Document Detail

Impediments to prenatal diagnosis for beta thalassaemia: experiences from Pakistan.
MedLine Citation:
PMID:  19003799     Owner:  NLM     Status:  MEDLINE    
OBJECTIVE: To investigate the practices of parents of beta thalassaemia children towards utilization of prenatal diagnosis (PND) in Pakistan. METHODS: A cross-sectional study was done between April and September 2007 at two thalassaemia treatment centers in Rawalpindi and Islamabad. Simple random sampling was employed to interview 215 parents of thalassaemic children. Parents of thalassaemic children who were not planning to have any more children were excluded from the study. A structured questionnaire with preassigned values was developed for collection of data. RESULTS: Out of the 215 respondents, 149 (69%) families had a pregnancy following the birth of the registered thalassaemic child. Among 149 couples, 90 (60%) did not request PND. The main reasons for underutilization of PND included lack of awareness (23%), high cost (23%), poor access (17%), delay in seeking (16%) and advice against the test (12%). A significant improvement in the use of PND was observed with increasing mother's education (p < 0.016). CONCLUSION: PND for thalassaemia is available in Pakistan for over a decade but its use remains limited. There is a need to increase its utilization by addressing various impediments noted in this study.
Sajida Naseem; Suhaib Ahmed; Farhaan Vahidy
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Prenatal diagnosis     Volume:  28     ISSN:  0197-3851     ISO Abbreviation:  Prenat. Diagn.     Publication Date:  2008 Dec 
Date Detail:
Created Date:  2008-12-02     Completed Date:  2009-02-20     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  8106540     Medline TA:  Prenat Diagn     Country:  England    
Other Details:
Languages:  eng     Pagination:  1116-8     Citation Subset:  IM    
Copyright Information:
Copyright (c) 2008 John Wiley & Sons, Ltd.
Armed Forces Post Graduate Medical Institute, Department of Community Health Sciences, Rawalpindi, Pakistan.
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MeSH Terms
Cross-Sectional Studies
Educational Status
Family Characteristics
Health Knowledge, Attitudes, Practice*
Patient Acceptance of Health Care / statistics & numerical data
Prenatal Diagnosis / psychology,  utilization*
beta-Thalassemia / diagnosis*

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