| Impediments to prenatal diagnosis for beta thalassaemia: experiences from Pakistan. | |
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MedLine Citation:
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PMID: 19003799 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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OBJECTIVE: To investigate the practices of parents of beta thalassaemia children towards utilization of prenatal diagnosis (PND) in Pakistan. METHODS: A cross-sectional study was done between April and September 2007 at two thalassaemia treatment centers in Rawalpindi and Islamabad. Simple random sampling was employed to interview 215 parents of thalassaemic children. Parents of thalassaemic children who were not planning to have any more children were excluded from the study. A structured questionnaire with preassigned values was developed for collection of data. RESULTS: Out of the 215 respondents, 149 (69%) families had a pregnancy following the birth of the registered thalassaemic child. Among 149 couples, 90 (60%) did not request PND. The main reasons for underutilization of PND included lack of awareness (23%), high cost (23%), poor access (17%), delay in seeking (16%) and advice against the test (12%). A significant improvement in the use of PND was observed with increasing mother's education (p < 0.016). CONCLUSION: PND for thalassaemia is available in Pakistan for over a decade but its use remains limited. There is a need to increase its utilization by addressing various impediments noted in this study. |
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Authors:
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Sajida Naseem; Suhaib Ahmed; Farhaan Vahidy |
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Publication Detail:
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Type: Journal Article |
Journal Detail:
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Title: Prenatal diagnosis Volume: 28 ISSN: 0197-3851 ISO Abbreviation: Prenat. Diagn. Publication Date: 2008 Dec |
Date Detail:
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Created Date: 2008-12-02 Completed Date: 2009-02-20 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8106540 Medline TA: Prenat Diagn Country: England |
Other Details:
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Languages: eng Pagination: 1116-8 Citation Subset: IM |
Copyright Information:
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Copyright (c) 2008 John Wiley & Sons, Ltd. |
Affiliation:
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Armed Forces Post Graduate Medical Institute, Department of Community Health Sciences, Rawalpindi, Pakistan. sajidanaseem@gmail.com |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Algorithms Awareness Cross-Sectional Studies Educational Status Family Characteristics Female Health Knowledge, Attitudes, Practice* Humans Pakistan Patient Acceptance of Health Care / statistics & numerical data Pregnancy Prenatal Diagnosis / psychology, utilization* beta-Thalassemia / diagnosis* |
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