| Impact of scoliosis surgery on activities of daily living in females with Rett syndrome. | |
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MedLine Citation:
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PMID: 19461379 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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BACKGROUND: Scoliosis is a common orthopaedic complication of Rett syndrome, and surgery is commonly used to reduce asymmetry in cases with severe scoliosis. METHODS: Data from questionnaires administered to caregivers biennially from 2000 to 2006 were used to describe functional skill levels in subjects with Rett syndrome, and within-subject change in 16 subjects with scoliosis surgery were compared with within-subject change in 186 pairs of data from 86 subjects with conservatively managed scoliosis. Postsurgical assessment was conducted after a mean of 17.8 months. RESULTS: Surgery was associated with improved activities of daily living as measured by the WeeFIM for subjects who were wheelchair bound (P = 0.05). Mobility levels, social interaction, communication skills, and the frequency of daytime napping remained similar for the group as a whole. CONCLUSIONS: Improvements in activities of daily living are likely to represent an increase in the quality of life for subjects and caregivers and were mainly found in subjects who were wheelchair bound, indicating that those who were more severely affected were able to benefit from this intervention. LEVEL OF EVIDENCE: Therapeutic study: level III. |
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Authors:
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Jenny Downs; Deidra Young; Nick de Klerk; Ami Bebbington; Gordon Baikie; Helen Leonard |
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Publication Detail:
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Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't |
Journal Detail:
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Title: Journal of pediatric orthopedics Volume: 29 ISSN: 1539-2570 ISO Abbreviation: J Pediatr Orthop Publication Date: 2009 Jun |
Date Detail:
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Created Date: 2009-05-22 Completed Date: 2009-08-11 Revised Date: 2011-01-03 |
Medline Journal Info:
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Nlm Unique ID: 8109053 Medline TA: J Pediatr Orthop Country: United States |
Other Details:
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Languages: eng Pagination: 369-74 Citation Subset: IM |
Affiliation:
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Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth, Western Australia. |
Export Citation:
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APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
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Activities of Daily Living* Adolescent Australia / epidemiology Caregivers / psychology Child Databases, Factual Female Humans Mobility Limitation Quality of Life Questionnaires Rett Syndrome / complications, surgery* Scoliosis / complications, surgery* Severity of Illness Index Wheelchairs |
| Grant Support | |
ID/Acronym/Agency:
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5R01HD043100-05/HD/NICHD NIH HHS; R01 HD043100-05/HD/NICHD NIH HHS |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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