Document Detail

Imagined futures: how experiential knowledge of disability affects parents' decision making about fetal abnormality.
MedLine Citation:
PMID:  21624022     Owner:  NLM     Status:  MEDLINE    
BACKGROUND: Knowledge of disability is considered key information to enable informed antenatal screening decisions by expectant parents. However, little is known about the role of experiential knowledge of disability in decisions to terminate or continue with a pregnancy diagnosed with a fetal abnormality.
OBJECTIVE: To explore the role that expectant parents' experiential knowledge of disabilities and conditions can play in real-life decisions to continue or end a pregnancy with a fetal abnormality.
DESIGN: Secondary analysis of qualitative narrative interview data informed by contextual systems framework.
SETTING: Participants were recruited throughout the United Kingdom and interviewed between 2004 and 2006.
PARTICIPANTS: Twenty-four women and four of their male partners who had direct or indirect experience of disability or illness and who had proceeded with or ended a pregnancy diagnosed with a fetal abnormality.
FINDINGS: Most respondents recounted using their experiential knowledge of disability, whether of their unborn baby's condition or of a different condition, to try to imagine the future for their unborn child, themselves and their family when making their decision. Some, who were considering continuing their pregnancy and had little or no experience of their unborn baby's specific disability, sought out others' experiences of the condition following antenatal diagnosis.The nature of a parent's experiential knowledge did not predict whether they continued with or terminated their pregnancy.
DISCUSSION: Prospective parents may find it helpful to discuss their existing knowledge of their unborn baby's condition with health professionals who are aware of the influence this might have on parents' decisions.
Emma F France; Louise Locock; Kate Hunt; Sue Ziebland; Kate Field; Sally Wyke
Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't     Date:  2011-05-30
Journal Detail:
Title:  Health expectations : an international journal of public participation in health care and health policy     Volume:  15     ISSN:  1369-7625     ISO Abbreviation:  Health Expect     Publication Date:  2012 Jun 
Date Detail:
Created Date:  2012-05-23     Completed Date:  2012-09-25     Revised Date:  2014-02-20    
Medline Journal Info:
Nlm Unique ID:  9815926     Medline TA:  Health Expect     Country:  England    
Other Details:
Languages:  eng     Pagination:  139-56     Citation Subset:  IM    
Copyright Information:
© 2011 Blackwell Publishing Ltd.
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MeSH Terms
Abortion, Induced / psychology
Congenital Abnormalities / diagnosis,  embryology*
Decision Making*
Disabled Persons / psychology*
Great Britain
Health Knowledge, Attitudes, Practice*
Interviews as Topic
Middle Aged
Prenatal Diagnosis / psychology
Young Adult
Grant Support
MC_U130059811//Medical Research Council; //Department of Health

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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