| Imagined futures: how experiential knowledge of disability affects parents' decision making about foetal abnormality. | |
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MedLine Citation:
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PMID: 21624022 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
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Background Knowledge of disability is considered key information to enable informed antenatal screening decisions by expectant parents. However, little is known about the role of experiential knowledge of disability in decisions to terminate or continue with a pregnancy diagnosed with a foetal abnormality. Objective To explore the role that expectant parents' experiential knowledge of disabilities and conditions can play in real-life decisions to continue or end a pregnancy with a foetal abnormality. Design Secondary analysis of qualitative narrative interview data informed by contextual systems framework. Setting Participants were recruited throughout the United Kingdom and interviewed between 2004 and 2006. Participants Twenty-four women and four of their male partners who had direct or indirect experience of disability or illness and who had proceeded with or ended a pregnancy diagnosed with a foetal abnormality. Findings Most respondents recounted using their experiential knowledge of disability, whether of their unborn baby's condition or of a different condition, to try to imagine the future for their unborn child, themselves and their family when making their decision. Some, who were considering continuing their pregnancy and had little or no experience of their unborn baby's specific disability, sought out others' experiences of the condition following antenatal diagnosis.The nature of a parent's experiential knowledge did not predict whether they continued with or terminated their pregnancy. Discussion Prospective parents may find it helpful to discuss their existing knowledge of their unborn baby's condition with health professionals who are aware of the influence this might have on parents' decisions. |
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Authors:
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Emma F France; Louise Locock; Kate Hunt; Sue Ziebland; Kate Field; Sally Wyke |
Publication Detail:
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Type: JOURNAL ARTICLE Date: 2011-5-30 |
Journal Detail:
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Title: Health expectations : an international journal of public participation in health care and health policy Volume: - ISSN: 1369-7625 ISO Abbreviation: - Publication Date: 2011 May |
Date Detail:
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Created Date: 2011-5-31 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9815926 Medline TA: Health Expect Country: - |
Other Details:
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Languages: ENG Pagination: - Citation Subset: - |
Copyright Information:
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© 2011 Blackwell Publishing Ltd. |
Affiliation:
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Research Fellow, School of Nursing, Midwifery and Health, Alliance for Self Care Research, University of Stirling, Stirling Research Fellow, Department of Politics and International Relations, University of Edinburgh, Edinburgh Senior Researcher and Lecturer, Department of Primary Health Care, Oxford University, Oxford Honorary Professor, School of Nursing, Midwifery and Health, Alliance for Self Care Research, University of Stirling, Stirling Senior Research Scientist and Leader of Gender and Health Programme, Medical Research Council (MRC) Social and Public Health Sciences Unit, University of Glasgow, Glasgow Honorary Professor, School of Nursing, Midwifery and Health, Alliance for Self Care Research, University of Stirling, Stirling Research Director, DIPEx, Department of Primary Health Care, Oxford University, Oxford Senior Research Fellow, Department of Primary Health Care, Oxford University, Oxford Professor of Health and Social Care, and Director of Alliance for Self-care Research, School of Nursing, Midwifery and Health, Alliance for Self Care Research, University of Stirling, Stirling, UK. |
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