| Home ventilation for amyotrophic lateral sclerosis patients: outcomes, costs, and patient, family, and physician attitudes. | |
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MedLine Citation:
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PMID: 8437718 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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We conducted this study to better inform amyotrophic lateral sclerosis (ALS) patients about home ventilation and to assist them in decision-making. We gathered data on the prevalence of ALS patients on home ventilation in northern Illinois and the percentage who chose it, and we asked identified subjects, their families, and physicians for their attitudes toward home ventilation. Fewer than 10% of ALS patients had chosen home ventilation, and fewer than 5% were still on it. Seventeen patients (90%) were glad to have chosen home ventilation and would choose it again. Family caregivers reported major burdens, and only half would choose it for themselves. The mean yearly cost of home ventilation was $153,252. Home ventilation is effective for ALS patients had desired by the small number who undergo it, but it imposes significant burdens on families. |
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Authors:
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A H Moss; P Casey; C B Stocking; R P Roos; B R Brooks; M Siegler |
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Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't |
Journal Detail:
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Title: Neurology Volume: 43 ISSN: 0028-3878 ISO Abbreviation: Neurology Publication Date: 1993 Feb |
Date Detail:
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Created Date: 1993-03-23 Completed Date: 1993-03-23 Revised Date: 2006-11-15 |
Medline Journal Info:
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Nlm Unique ID: 0401060 Medline TA: Neurology Country: UNITED STATES |
Other Details:
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Languages: eng Pagination: 438-43 Citation Subset: AIM; IM |
Affiliation:
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Center for Health Ethics and Law, West Virginia University Health Sciences Center, Morgantown 26506-9022. |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adult Aged Amyotrophic Lateral Sclerosis / economics, nursing*, psychology Attitude Attitude of Health Personnel Family / psychology Female Health Care Costs Home Care Services* / economics Humans Illinois Male Middle Aged Physicians Prognosis Questionnaires Respiration, Artificial / economics, methods*, psychology Treatment Outcome |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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