| Having a brother or sister with Down syndrome: perspectives from siblings. | |
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MedLine Citation:
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PMID: 21910244 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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This study asks brothers and sisters about their feelings and perceptions toward their sibling with Down syndrome (DS). We analyzed valid and reliable surveys from 822 brothers and sisters whose families were on the mailing lists of six non-profit DS organizations around the country. More than 96% of brothers/sisters that responded to the survey indicated that they had affection toward their sibling with DS; and 94% of older siblings expressed feelings of pride. Less than 10% felt embarrassed, and less than 5% expressed a desire to trade their sibling in for another brother or sister without DS. Among older siblings, 88% felt that they were better people because of their siblings with DS, and more than 90% plan to remain involved in their sibling's lives as they become adults. The vast majority of brothers and sisters describe their relationship with their sibling with DS as positive and enhancing. |
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Authors:
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Brian G Skotko; Susan P Levine; Richard Goldstein |
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Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't Date: 2011-09-09 |
Journal Detail:
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Title: American journal of medical genetics. Part A Volume: 155A ISSN: 1552-4833 ISO Abbreviation: Am. J. Med. Genet. A Publication Date: 2011 Oct |
Date Detail:
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Created Date: 2011-09-28 Completed Date: 2012-01-18 Revised Date: 2012-05-10 |
Medline Journal Info:
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Nlm Unique ID: 101235741 Medline TA: Am J Med Genet A Country: United States |
Other Details:
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Languages: eng Pagination: 2348-59 Citation Subset: IM |
Copyright Information:
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Copyright © 2011 Wiley-Liss, Inc. |
Affiliation:
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Division of Genetics, Department of Medicine, Children's Hospital Boston, MA, USA. brian.skotko@childrens.harvard.edu |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adolescent Adult Analysis of Variance Child Down Syndrome* Emotions* Female Genetic Counseling / methods Humans Male Middle Aged Quality of Life / psychology* Questionnaires Regression Analysis Siblings / psychology* United States |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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