| Haemophilia registry of the medical committee of the swiss haemophilia society. | |
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MedLine Citation:
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PMID: 19763362 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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The Swiss Haemophilia Registry of the Medical Committee of the Swiss Haemophilia Society was established in 2000. Primarily it bears epidemiological and basic clinical data (incidence, type and severity of the disease, age groups, centres, mortality). Two thirds of the questions of the WFH Global Survey can be answered, especially those concerning use of concentrates (global, per capita) and treatment modalities (on-demand versus prophylactic regimens). Moreover, the registry is an important tool for quality control of the haemophilia treatment centres. There are no informations about infectious diseases like hepatitis or HIV, due to non-anonymisation of the data. We plan to incorporate the results of the mutation analysis in the future. |
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Authors:
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B Brand; N von der Weid |
Publication Detail:
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Type: Journal Article |
Journal Detail:
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Title: Hämostaseologie Volume: 29 Suppl 1 ISSN: 0720-9355 ISO Abbreviation: Hamostaseologie Publication Date: 2009 Oct |
Date Detail:
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Created Date: 2009-09-18 Completed Date: 2010-01-28 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8204531 Medline TA: Hamostaseologie Country: Germany |
Other Details:
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Languages: eng Pagination: S16-8 Citation Subset: IM |
Affiliation:
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Innere Medizin, Universitätsklinikum Zürich. |
Export Citation:
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APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
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Adult Blood Coagulation Disorders / epidemiology*, mortality, therapy Blood Coagulation Factors / therapeutic use Databases, Factual / standards Humans Infant, Newborn Quality Control Registries* / standards Societies, Medical Switzerland / epidemiology |
| Chemical | |
Reg. No./Substance:
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0/Blood Coagulation Factors |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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